Duchenne Parents Discussions (11)

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Duchenne specialist

My son, 3 was diagnosed in November. We went to an MD clinic and I felt like the doctor knew less about Duchenne than I did. Is this typica…

Started by Kimberly Damron

6 Feb 22, 2012
Reply by Claire Diemler

Becker Studies?

Since we are seeing some promise in the exon skipping, I thought I'd ask a question. Has there ever been a study done on Beckers patients,…

Started by Andrew Kerr

0 Sep 10, 2011

Nectar T

Hi: My boy with almost 5, diagnosed last month with exon 51 deletion. I received a letter from Greece for Nectar T treatment in which they…

Started by farhad

3 Jan 26, 2010
Reply by Jamie M.

My son

My son just tuned 2 years old. He was diagnosed back in July with DMD. I am a single mother of 2 boys and they both bring so much joy to my…

Started by Leslie McIntyre

6 Dec 15, 2009
Reply by Leslie McIntyre

Funding for van

I am a single mom of an 11 year old boy. He has recently gotten his first electric chair. All 300 lbs of it. We live in TN and are looking…

Started by Heather Sims

1 Jun 11, 2009
Reply by Laurie Barton


Help! My son, 8, was just diagnosed with Duchenne yesterday. I need support and people to talk to. Can anyone help me out.

Started by irishgirl

30 May 30, 2009
Reply by Ann Avery

Genetic Counseling Student

Greetings to all. I am a genetic counseling student working on a project to enlighten my fellow students about muscular dystrophy. It is ea…

Started by CLeAnn

1 Feb 25, 2009
Reply by Rebecca Saulsbury

Raising Money for PPMD

My friends son has Duchenne and I would like to help to raise money to help these kids, and to help find a cure. I make personalized childr…

Started by Tom Bolin

1 Jan 4, 2009
Reply by Jennifer Collier


My son Skyler, 5 is going in for three big fillings soon. He is also on Deflazacort. His pediatric dental specialist wants to sedate Skyler…

Started by brad stringer

2 Oct 24, 2008
Reply by brad stringer

Showing signs?

Hi everyone! As many of you know, my son, Ryan was diagnosed with DMD on May 29, 2008. He has always been delayed in his milestones. He has…

Started by Jennifer Collier

5 Oct 16, 2008
Reply by Kelvinsmom - Michelle


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