Latest Activity: Nov 8, 2013
Started by Kimberly Damron. Last reply by Claire Diemler Feb 22, 2012.
Started by Andrew Kerr Sep 10, 2011.
Started by farhad. Last reply by Jamie M. Jan 26, 2010.
I started a page for anyone who has or knows a little boy with dmd. its called End Duchennes. Feel free to join and share all the info u may have.
Gavin will be 5 on Nov. 3. He is starting to walk on his toes, more on his left leg then his right. He falls sometimes, and nothing is in way. I am not sure if he gets embarrassed, but when he falls, he says someone pushed him even though no one was around him. It is not easy.
In response to Rebecca, i have two boys with DMD. Dylan is 19 and Zachary is 12. They have the exact same deletions (2-18). Their development has been completely different. Dylan was slower to walk and talk, but he walked until he was 13 and Zachary went into his chair full time by the age of 10.
Hi my name is Damien Howey my son Addison was dignosed with DMD in May he is 3 years old and now i am ready to start talk to other parents
Hi, my name is Christina. My son, Bryan has DMD. He is 8 y/o and in the 3rd grade. I just joined this group. We live in the Los Angeles area. I look forward to communicating with everyone.
Hello, I am new to the site but not to DMD. My son Vincent was diagnosed in June of 1998 when he was 5. He is 17 right now. He started using a wheelchair when i was almost 13. It was hard at first he couldn't understand why. He is doing well. If anyone would like to chat leave me a message.
Hello Everyone! I have 2 sons with DMD. Joseph will be 6 on Thursday and Ethan just turned 1. Joseph was diagnosed when I was 2 months pregnant with his brother. Ethan was diagnosed at 2 months old. It has been a rough the last year and a half but we're surviving! I am always willing to talk so if you ever need someone to talk to or to just listen feel free to send me a message!
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