Presentation of attempts to lower CPK levels by change in diet or supplements.
Latest Activity: Sep 13, 2013
Started by Nimi Langer. Last reply by Tammy Sep 13, 2013.
Lowering CPKOne indication, as I understand, used in clinical trials to check Duchenne treatment efficacy is to check change in CPK's level.I ask from all parents who changed their son's diet or…Continue
Tags: SUPPLEMENTS, DIET, CPK
Is Accupressure Thereapy (Treatment) is effective to treat/cure the Duchhane Muscular Dystrophy..?
Thanks with Regards
Are any suppliment foods/medecines are effective to reduce the CPK level and provide strenght to muscules.If yes then give the details of suppliment foods/medecines with manufacturers details.
From my research it is better go give losartan and ace invibitors before problem in th heart shows.
I will start giving at the age of 6
In the states and Canada people give losartan/ace inhibitor much earlier (I know of a few that start at age of four.
Hi Manoj Nag,
I am not an expert nor a doctor. Being around though I see what works for others:
First level steroids (with vitamin D and Calcium)
Second Level: idebenone, Losartan/(other blood pressure drugs)
Third level: protandim, multi vitamin Green tea
Fourth level: Vitamin E, antioxidant food, omega 3
I hope this helps. Let me know if you need any clarifications.
Again I'm just a father from the community
thanks for sharing this info. I wish a more orgenized study on diet and its effect would be done.
We parents could decide to do it. I thought of doing no milk and red meet diet and measure the CPK but for all these experiements we need to be a group of parents. Hopefully one day.
ok well i am not sure whether changes in diet helped,but Lewis was at 22000 cpk at diagnosis last summer and when he went on steroids this summer he had some blood in his urine .So they wanted cpk checked again and it came back at 9000.Either he has lost muscle therefore there is not as much damage coming away or his change in diet has helped.I removed as much processed food as possible,limited treats,use protandim ,idebenone and the multi vits.I like to think it's the diet.It can do no harm.I find if he has any articficial sugar his speecg gets affected.
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