Presentation of attempts to lower CPK levels by change in diet or supplements.
Latest Activity: Aug 22, 2014
Started by Nimi Langer. Last reply by Tammy Sep 13, 2013.
Lowering CPKOne indication, as I understand, used in clinical trials to check Duchenne treatment efficacy is to check change in CPK's level.I ask from all parents who changed their son's diet or…Continue
Tags: SUPPLEMENTS, DIET, CPK
Hi, we managed to reduce our sons levels by giving him COQ10 400mg per day with almond butter to help with its absorption. We also give 5000iu of Vitamin D drops in with this. An anti inflammatory diet is best with lots of fresh fruit and vegetables, and more alkaline diet the better. We also give Magnesium, Zinc, Acetyl L-Carnitine, Colloidal Silver (due to no immunity with being on steroid Deflazacort), and probiotics. Want to start vege juicing but need to start slowly as he already has lots of supplements in drinks as cannot swallow pills etc.
Please help me how to reduce CPK , as my son is now having CPK level of 24800.
Thanks With Regards
Is Accupressure Thereapy (Treatment) is effective to treat/cure the Duchhane Muscular Dystrophy..?
Thanks with Regards
Are any suppliment foods/medecines are effective to reduce the CPK level and provide strenght to muscules.If yes then give the details of suppliment foods/medecines with manufacturers details.
From my research it is better go give losartan and ace invibitors before problem in th heart shows.
I will start giving at the age of 6
In the states and Canada people give losartan/ace inhibitor much earlier (I know of a few that start at age of four.
Hi Manoj Nag,
I am not an expert nor a doctor. Being around though I see what works for others:
First level steroids (with vitamin D and Calcium)
Second Level: idebenone, Losartan/(other blood pressure drugs)
Third level: protandim, multi vitamin Green tea
Fourth level: Vitamin E, antioxidant food, omega 3
I hope this helps. Let me know if you need any clarifications.
Again I'm just a father from the community
thanks for sharing this info. I wish a more orgenized study on diet and its effect would be done.
We parents could decide to do it. I thought of doing no milk and red meet diet and measure the CPK but for all these experiements we need to be a group of parents. Hopefully one day.
Welcome toPPMD Community
Sign Upor Sign In
Or sign in with:
Need help using this community site? Visit Ning's Help Page.
May 24, 2015 at 6pm to June 7, 2015 at 7pm – Seattle
May 30, 2015 all day – Seattle, Washington
June 5, 2015 to June 6, 2015 – Omaha, NE
June 10, 2015 from 1pm to 2pm – Online Webinar - Eastern Time Zone
© 2015 Created by PPMD.
Report an Issue |
Terms of Service
Please check your browser settings or contact your system administrator.