For moms who are carriers of Duchenne
Latest Activity: Jan 9
Started by Jessica Argueta Tucker. Last reply by Sif Hauksdóttir Jan 4.
Started by Betty Vertin. Last reply by Laurie Barton Mar 14, 2012.
Started by Mandy Kerr. Last reply by Michelle LB Jul 23, 2011.
I am a carrier mom and I just want to put a word out there to moms who want to have more children. Science is AMAZING. There are so many reproductive options out there that I hope you can all investigate for yourself if interested or for your daughters who may be carriers as well.
I am struggling to stay positive.
HI Kristin, I also have two sons with DMD and manifesting (i believe ) carrier, with a 15 month old daughter. Something someone told me once really made sense. " I well know the struggles that are ahead. But there are so many, many, wonderful, special moments that most parents do not experience." it's a mom who also had two sons with DMD, only never had a daughter. Take good care of your beautiful family and know you are not in this alone in this.
I have a 10 year old daughter, too, but she has not been tested yet (my 7-year old son has Duchenne and I am a carrier). I have had the same thoughts about grandchildren. But then I try to think that we are in a time of such medical advances that if she wants to have kids, she will. Try to remain hopeful, that is how I get through some of the hard days. I am very sorry, I can totally relate, I would be feeling the same. When I get her tested in a couple of years I will be asking you for advice! The whole situation just sucks and I wish there was more we could do about it. Hang in there.
I am not sure how to respond to the news I got today. I have three kids. When we found out that Gavin has DMD back in 2009, it was devastating, then I found out I was pregnant in 2010 I decided to get tested,I am a carrier. I knew then that the baby had a 50/50 chance of having it. When he was born, we had him tested a few month later and found out he too had it. Again was torn. Today I got a call from my daughter's Endo doctor, Skyler is a carrier. I am just not sure how to respond. Here I am a diagnosed carrier, my two sons have DMD and now my daughter is a diagnosed carrier. I feel Like I have been cheated. I don't know about many of you, but my thoughts went to OMG, I am not going to have any grandchildren. Is that crazy? How do I explain to my daughter that she is a carrier? She is 10 years old. I want to scream, I want to cry. I don't know what God's plan is for me and my children, but I pray that he gives me some direction.
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