Canadian Families Discussions (17)

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Awesome article!

This story will appear in the Toronto Star tomorrow. This young man is 30 and lives in a town very close to ours. He has written a book. Re…

Started by Angie EvansLatest Reply

Discussions Replies Latest Activity

New trial coming to Winnipeg

We were informed today of a new trial coming to Winnipeg. Joshua's specialist had signed a confidentiality form so wasn't able to tell us w…

Started by Joshua's mom

7 Jun 21, 2013
Reply by Joshua's mom

Health Canada Streamlining Access To Drugs for Orphan Diseases

CBC has the article here: http://www.cbc.ca/news/health/story/2012/10/03/orphan-drugs.html I'll have to do some more reading up on this in…

Started by Andrew Kerr

0 Oct 4, 2012

Who pays for your deflazacort?

Anyone in Ontario who  pays for their deflazacort? I was chatting to someone in London. She does not have to pay for her son's deflazacort.…

Started by Angie Evans

7 Apr 2, 2012
Reply by Andrew Kerr

aches and pains

I hope everyone is enjoying the weekend. I have ran into a few issues in the last couple of weeks regarding my son, and I'm not to sure how…

Started by Geraldine Coolidge

4 Feb 19, 2012
Reply by Andrea Cleary

Awesome article!

This story will appear in the Toronto Star tomorrow. This young man is 30 and lives in a town very close to ours. He has written a book. Re…

Started by Angie Evans

2 Jan 20, 2012
Reply by Angie Evans

PPMD Vancouver??

I heard a rumour that there is a PPMD chapter or an arm of PPMD in Vancouver? Does anyone know anything about this? Thanks! :)

Started by Angie Evans

2 Jan 19, 2012
Reply by Angie Evans

PPMD in Canada

Has anyone heard if there is someone interested in heading up a PPMD in Canada? Does anyone know how many families are affected by DMD and…

Started by Angie Evans

7 Jan 18, 2012
Reply by Andrew Kerr

Deflazacort is now covered in Saskatchewan

Well, it took about 16 months, but today I received an email and phone call from our Ministry of Health with the news that with a diagnosis…

Started by Andrew Kerr

18 Jan 18, 2012
Reply by Angie Evans

Thyroid

We had a visit with an Endocrinologist last week and found out today that Jacob's TSH level is low. We found out through our neurologist's…

Started by Angela Bourgeois

1 Jul 24, 2011
Reply by Nimi Langer

heart medication

Jacob is 11, almost 12 and, of course, has DMD.  He has only recently started Lisinopril.  I am very discouraged with his cardiologist.  I…

Started by Angela Bourgeois

3 Apr 28, 2011
Reply by amit gupta

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