Canadian Families Discussions (17)
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Awesome article!This story will appear in the Toronto Star tomorrow. This young man is 30 and lives in a town very close to ours. He has written a book. Re… Started by Angie EvansLatest Reply |
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New trial coming to WinnipegWe were informed today of a new trial coming to Winnipeg. Joshua's specialist had signed a confidentiality form so wasn't able to tell us w… Started by Joshua's mom |
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Jun 21, 2013 Reply by Joshua's mom |
Health Canada Streamlining Access To Drugs for Orphan DiseasesCBC has the article here: http://www.cbc.ca/news/health/story/2012/10/03/orphan-drugs.html I'll have to do some more reading up on this in… Started by Andrew Kerr |
0 | Oct 4, 2012 |
Who pays for your deflazacort?Anyone in Ontario who pays for their deflazacort? I was chatting to someone in London. She does not have to pay for her son's deflazacort.… Started by Angie Evans |
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Apr 2, 2012 Reply by Andrew Kerr |
aches and painsI hope everyone is enjoying the weekend. I have ran into a few issues in the last couple of weeks regarding my son, and I'm not to sure how… Started by Geraldine Coolidge |
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Feb 19, 2012 Reply by Andrea Cleary |
Awesome article!This story will appear in the Toronto Star tomorrow. This young man is 30 and lives in a town very close to ours. He has written a book. Re… Started by Angie Evans |
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Jan 20, 2012 Reply by Angie Evans |
PPMD Vancouver??I heard a rumour that there is a PPMD chapter or an arm of PPMD in Vancouver? Does anyone know anything about this? Thanks! :) Started by Angie Evans |
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Jan 19, 2012 Reply by Angie Evans |
PPMD in CanadaHas anyone heard if there is someone interested in heading up a PPMD in Canada? Does anyone know how many families are affected by DMD and… Started by Angie Evans |
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Jan 18, 2012 Reply by Andrew Kerr |
Deflazacort is now covered in SaskatchewanWell, it took about 16 months, but today I received an email and phone call from our Ministry of Health with the news that with a diagnosis… Started by Andrew Kerr |
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Jan 18, 2012 Reply by Angie Evans |
ThyroidWe had a visit with an Endocrinologist last week and found out today that Jacob's TSH level is low. We found out through our neurologist's… Started by Angela Bourgeois |
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Jul 24, 2011 Reply by Nimi Langer |
heart medicationJacob is 11, almost 12 and, of course, has DMD. He has only recently started Lisinopril. I am very discouraged with his cardiologist. I… Started by Angela Bourgeois |
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Apr 28, 2011 Reply by amit gupta |
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