Hello:

I am posting a resource information sheet that is mostly for California but if other states can use any of it then that is great.

I am also asking everyone to review to help add to this resource sheet as we learn more. This resource sheet is to help all.

Thanks Polly, Cliff and Cheryl for your help.

Julie

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Thanks for this Julie. My, you are a hard worker!
Rebecca in Berkeley (wife to the Duchenne Sucks t-shirt guy)
Here are links to the Medical Baseline information/application forms for the Gas and Electric companies that I know of in CA:

PG&E:
Med Baseline Info: http://www.pge.com/includes/docs/pdfs/shared/customerservice/brochu...
Med Baseline App: http://www.pge.com/includes/docs/pdfs/shared/customerservice/brochu...

SDG&E:
Med Baseline Info/App: http://www.sdge.com/documents/residential/baselineapplicationlarge.pdf

Southern California Edison:
Med Baseline Info: http://www.sce.com/NR/rdonlyres/217DA568-409F-410F-AE5B-2F6B2D646D3...
Med Baseline App: http://www.sce.com/NR/rdonlyres/4D808433-F0F6-44F7-AB96-120F6B7DA9D...

Southern California Gas Company:
Med Baseline Info/App: http://www.socalgas.com/residential/assistance/medallowance/documen...

i dunno if there are others in CA.
Thanks go to Polly for this one.

The Los Angeles Department of Water & Power

Physician Certified Allowance Discount
Extended to any residential customer who provides verification by a state-licensed physician to the Department that an individual who is a paraplegic, hemiplegic, quadriplegic, multiple sclerosis patient, neuromuscular patient, and scleroderma patient being treated for life threatening illness is a full-time resident of the premises served.

The limited allowance shall also be available to an individual who has compromised immune system, provided that a state-licensed physician certifies in writing to the Department that an additional heating or cooling allowance, or both, is medically necessary in the individual's full-time residence that the Department serves to sustain the life of the person or prevent deterioration of the person's medical condition.

For more information, please contact DWP Customer Services by phone at 1(800) DIAL DWP (342-5397) or by e-mail at ccenter@ladwp.com
Actually - The thanks should go to Lee Ann Faeth for the information about LADWP, she is the one that investigated it and told me about it. Thanks Lee Ann & Christian for posting the information for others. :-)

Also - it is important to note that there aren't income restrictions for the medical baseline allowance programs - they are based on medical certification only. Although the programs in my area don't specifically mention "neuromuscular patient" they do include individuals who have a "compromised immune system"...which is how we substantiated our application and our pediatrician agreed and signed the medical certification on the required forms. I feel that it is important to draw attention to this because my initial response when I found out about this program was that my son is still walking so he wouldn't qualify and our income would of course disqualify him as well. Then a wonderful friend brought up some very important points to me (increased usage of air/fans in the summer to keep Cole cool and comfortable, heat in the winter as well as humidifier to keep him hopefully from getting sick as often....and that he is immune suppressed as a result of the long-term steroid therapy). Still I hesitated - I even encouraged (ok, I nagged) others to apply....and gave great arguments for why they should...like you have a pool which is necessary for aquatic therapy.....power chairs, scooters....you name it I used it. I guess what I am trying to get across is if you think you are taking away from others that deserve it more...you aren't. These programs were created for families just like all of ours ...and if you still feel like you shouldn't apply then I would encourage you to apply and either put the amount saved into an account just for your son or donate it to PPMD to help fund a cure. :-)

Polly
Hi there everyone. I also wanted to add the link to the DMV website for those of you who have yet to apply for a Disabled Parking Placard. Since Avery is so young, I hadn't really considered this until Polly recommended it and I'm grateful to her for sharing the info with me, so I wanted to add it to our list of resources.

http://www.dmv.ca.gov/forms/reg/reg195.htm

I completed the required info and brought it along to our CCS Pediatrician appointment earlier this week and asked that she complete the Doctor's Certification.
Just in case others didn't know - the DMV form for a disabled placard can either be turned in to your local DMV or if you have a membership at AAA they can process the request there and the wait is usually substantially less time than you might spend at the DMV.

Lee Ann Faeth said:
Hi there everyone. I also wanted to add the link to the DMV website for those of you who have yet to apply for a Disabled Parking Placard. Since Avery is so young, I hadn't really considered this until Polly recommended it and I'm grateful to her for sharing the info with me, so I wanted to add it to our list of resources.

http://www.dmv.ca.gov/forms/reg/reg195.htm

I completed the required info and brought it along to our CCS Pediatrician appointment earlier this week and asked that she complete the Doctor's Certification.
For those who like to visit California State Parks for the day or overnight camping:

http://www.parks.ca.gov/?page_id=1049

DISABLED DISCOUNT PASS

For permanently disabled persons, this pass provides year-round 50% discount for use of all basic facilities (including parking and camping) in state-operated parks except Hearst San Simeon SHM.

The discount does not apply to fees under $2.00 or supplementary fees, and cannot be used with any other discount/pass program. The pass is not valid at units operated by local government, private agencies or concessionaires. It is not valid for group campsites, commercial use, or for supplemental fees and cannot be used in conjunction with any other pass and/or discount.

Download the Disabled Discount Pass Application and Eligibility Req... (PDF format)

Download the Disabled Discount Pass Application and Eligibility Req... (Excel format)

Application may be made in person through most district offices (please contact in advance to ensure availability) or at the Park Pass Sales Office located at 3930 Seaport Blvd, West Sacramento, California. Click here for a location map. (PDF format)
This will get you the application for Smud:

www.smud.org/en/residential/services/Pages/medical-rate.aspx

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