This group is for families living in CA.
Location: California
Members: 90
Latest Activity: Jul 18, 2021
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Hello, my son, Bryan is about to have a spinal fussion surgery in a couple of weeks. I was trying to set up a home schooling involving a teacher to come out to our home a couple times a week. The school is leaning towards emailing me his homework once a week. Can anyone please let me know their experiance with their school after a surgery?
I recently moved to Berkeley from Missoula, Montana. My son, Cory, has Duchenne. He remains in Montana with his mother, and it's tough to be away from him. But I do what I can from here until I can return home to Montana. In the meantime, it would be nice to have some connections in California and the Bay Area. Thanks.
If there is anyone that can give me advise on supplements I would really appreciate it. I am going to start using Creatine and considered melatonin, but I am winging it. Facebook @ mark perrotte
Families in Palm Springs or Coachella Valley?
F.A.C.E.S. of Northern CA would like to invite you to our kick-off event!
Sunday Dec 4th 2011 1 to 4 PM
at Shriner's Hospital
2425 Stockton Blvd, Sacramento
7th Floor Ballroom
RSVP to Rebecca Saulsbury by Nov 20th
rsaulsbury@gmail.com
Lunch provided, carpool available.
Pat Furlong, Ryan Fisher & Sheila Moeshen of PPMD will be in attendance.
Join our Facebook page and get more involved
with your local Duchenne/Becker community! Meet new friends!
F.A.C.E.S. of Northern CA Facebook Page
We are families in Northern California advocating, connecting, educating and supporting the Duchenne Muscular Dystrophy community as an outreach of Parent Project MD. Our goal is to strengthen families and individuals dealing with Duchenne by building ties, providing social opportunities, advocating and educating on a public and legislative level, and supporting Parent Project MD campaigns, until the day comes we can end Duchenne.
Hi!
If there are any families from southern CA who would like to attend the conference, but can't, please call me or send me a message. As the Parent Outreach Coordinator for Duchenne San Diego (DSD), my goal is to identify as many DMD families in need of connecting in our area as possible, and then make it happen! We are sponsoring families to attend the conference at no cost, because we believe the conference is THAT valuable. This will be my 7th conference and I have truly benefitted each and every time I come.
If you are not from SoCal, please spread the word to any families you know who are. We are going to have to finalize reservations/arrangements very soon.
My phone number is 619.446.8617.
Thanks!
Kelli
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