Is anyone here with a BMD diagnosis taking steroids?

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HI Keith:
I just asked that question to our MDA clinic Dr. (Greene) here in Flint last mont. He says he does not recommend it to his BMD patients due to "long term" negative effects on them.
take care - Jeff
Yeah, we were told that locally also, but Cincinnati put our son on steroids last year after evaluating him. He has an in-frame deletion, but his symptoms are closer to the Duchenne end of the Becker spectrum.


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