Latest Activity: Dec 19, 2019
Started by Ren Oct 16, 2019.
Started by Char Burke. Last reply by Amelia Nov 23, 2014.
Started by Darcy Tumminello. Last reply by Char Burke Jul 21, 2010.
Does anyone know when & where the 2012 Becker MD Conference is being held. We have never attended before however would like to this year. Kathi Cooley
Hello everyone! I'm new to the group and I'm actually the sister of the affected. He is 15 now and he hasn't been under any kind of treatment since he was 7. My Grandfather lived til the age of 75 passing n12/25/10. I'm really hoping to find some support/advice to convince my mother & stepfather that he won't be a "guinea pig" and that their are treatment options such as physical therapy etc. I'm worried for my brother who's inactivity, I fear, will be his downfall. He doesn't participate in any kind of sports nor is he active in anything else. Please help me!!! How do I approach this with them?
Our prayers are with your son and your family. There is a professor from the University of Western Australia named Steven Wilton who is an expert on MD. He travels to the US every year to be at the DMD conference.
I have meet him and you may want to try to contact him. He will assist and give you direction as to who you can meet and discuss your son.
God Bless and Merry Christmas
Our son has just been diagnosed with MD we are waiting further tests from the biopsy but not duchenne, probably outlier or severe BMD - prediction is that he may need wheelchair assistance at 16- 18 years of age.
Such a relief to find some people that are in the same boat as us!
We live in Melbourne Australia and looks like most of you are from USA
Support from anyone anywhere would be greatly appreciated - we know no one with BMD!
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