Aussies - Duchenne Foundation


Aussies - Duchenne Foundation

Duchenne Foundation can be found at

Join us to raise awareness in Australia.

Location: Australia
Members: 22
Latest Activity: Jan 26, 2016


Events - October 2009

Started by Deb Robins. Last reply by Deb Robins Oct 2, 2010. 3 Replies

National Registry

Started by Deb Robins. Last reply by Deb Robins Sep 20, 2009. 3 Replies

Clinical Trials

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Comment Wall


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Comment by Sharyn Thompson on July 29, 2008 at 8:52pm
So is there anyone else on here? I am Australian, living in SIngapore. My husband and I are from Collaroy, on Sydney's NOrthern Beaches. Our son James is 4 and was diagnosed 2 years ago. We put him on Deflazacort straight away and the results were amazing. He is a patient at The Children's Hospital at Westmead under Kathryn NOrth and Kristi Jones - all the doctors there are just AMAZING! We go home once a year for his checkups, but he also has 3-monthly check ups here in Singapore with a fantastic doctor, who works in conjunction with his Aussie doctors.

I miss Australia! I can't wait till we move back. We have two other kids - Charlyse, who is 3, and Saraya, who is only 5 months.

Anyone else out there want to introduce themselves? LEt's get this group rolling!

Members (20)


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