You may be aware that the new Commonwealth Government is conducting an inquiry into BETTER SUPPORT FOR CARERS who care for those with chronic illness, disability and frailty. Your view as a Carer is vital to help the government understand why the current system of support does not work for you, and to ensure that future services better meet your needs as a Carer.

We also encourage you to make a submission to the Inquiry before 4th July 2008. Writing your own letter to the committee helps the government to better appreciate the diversity of caring circumstances and needs. Letters must address some or all of the Terms of Reference and may be sent directly to the Chairperson of the Inquiry via email at committee.reps@aph.gov.au Take a look at the terms of reference and the proforma attached.

This Sunday 4pm AEST our regular chat session in the conference room, which can be downloaded from our PPA website www.parentproject.org.au is going to be a brainstorming session so that Pam (secretary) and I can write a submission from the perspective our our PPA carers. There is no guest this week - you be the guest and have a good old vent.

Come along and have your say? Best regards Deb Robins

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August 6 (Syd), 12 (Melb), 13 (Adelaide), 20th (Brissy) are the remaining dates of the public hearings for the carers' inquiry. The Inquiry contacted me today regarding our written submission, to invite a PPA rep to speak in Brisbane on Aug 20th and so will try to coordinate a spokesperson. See venues and agendas if you can attend a hearing in these capital cities next month. The more we tell our stories, the more we raise awareness for our low-profile - yet the most common childhood genetic disorder. http://www.aph.gov.au/house/committee/fchy/carers/hearings.htm

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