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Aussies - Duchenne Foundation

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Aussies - Duchenne Foundation

Duchenne Foundation can be found at www.duchennefoundation.org.au

Join us to raise awareness in Australia.

Website: http://www.duchennefoundation.org.au
Location: Australia
Members: 23
Latest Activity: Jan 26, 2016

Discussions

Events - October 2009

Started by Deb Robins. Last reply by Deb Robins Oct 2, 2010. 3 Replies

National Registry

Started by Deb Robins. Last reply by Deb Robins Sep 20, 2009. 3 Replies

Clinical Trials

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Comment by Deb Robins on December 10, 2014 at 12:23am

Hi Parul

This group is a little inactive sorry. FB tends to take over nowadays for information dissemination and support. Please like our FB & Twitter page & sign up for our newsletter as many of our members tend to communicate largely through those channels online. Our Victorian families are starting to get a support group together, would you like me to put you in touch?  Send your email to deb@duchennefoundation.org.au  and I'll pass it along to the Victorians. From me, I'm happy to help, find out what I can for you, or network online if you prefer.  Stay loved.  Deb (Mum to Doug, 27) 

Comment by Deb Robins on August 22, 2012 at 6:16am

Comment by Deb Robins on May 28, 2012 at 3:45am
A researcher in Canberra is doing a study about the unmet needs of carers...Australians may like to participate. I don't think it is limited to Queenslanders.

The link to the survey is:
http://canberra.qualtrics.com/SE/?SID=SV_7TEv1CtyySlLuRe ( Survey )

The link to the information sheet about the survey is:

http://mdqld.org.au/files/2012/05/questionnaire-information-sheet.pdf (Information Sheet)
Comment by Deb Robins on May 4, 2012 at 10:03am

Please vote for funding for a children's program at our joint national conference on the Gold Coast this coming October 4-6

http://goo.gl/q3i4i

Comment by Deb Robins on December 10, 2011 at 6:50am

Comment by Deb Robins on November 17, 2011 at 9:40am
Send this link to family & friends to support DF this Christmas http://goo.gl/eTJeh
Comment by Deb Robins on July 10, 2011 at 8:12am
Please send survey to all? Esp Aussies but not exclusively -Klair wants all opinions.  Both partners fill out .  http://goo.gl/kUz5T
Comment by Deb Robins on March 1, 2011 at 1:40am

Change your bookmarks  www.parentproject.org.au  no longer links to our new website address. You have to go straight to: www.duchennefoundation.org.au now.

 

Comment by Deb Robins on April 8, 2010 at 10:00am
Some Towards a Brighter Future Feb 2010 Conference presentations are up online now.
Comment by Tina & Darren Harris on December 15, 2009 at 1:10am
We are happy to become a member.
 

Members (22)

 
 
 

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