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Aussies - Duchenne Foundation

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Aussies - Duchenne Foundation

Duchenne Foundation can be found at www.duchennefoundation.org.au

Join us to raise awareness in Australia.

Website: http://www.duchennefoundation.org.au
Location: Australia
Members: 22
Latest Activity: May 4

Discussions

Events - October 2009

Started by Deb Robins. Last reply by Deb Robins Oct 2, 2010. 3 Replies

National Registry

Started by Deb Robins. Last reply by Deb Robins Sep 20, 2009. 3 Replies

Clinical Trials

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Comment by Deb Robins on May 4, 2012 at 10:03am

Please vote for funding for a children's program at our joint national conference on the Gold Coast this coming October 4-6

http://goo.gl/q3i4i

Comment by Deb Robins on December 10, 2011 at 6:50am

Comment by Deb Robins on November 17, 2011 at 9:40am
Send this link to family & friends to support DF this Christmas http://goo.gl/eTJeh
Comment by Deb Robins on July 10, 2011 at 8:12am
Please send survey to all? Esp Aussies but not exclusively -Klair wants all opinions.  Both partners fill out .  http://goo.gl/kUz5T
Comment by Deb Robins on March 1, 2011 at 1:40am

Change your bookmarks  www.parentproject.org.au  no longer links to our new website address. You have to go straight to: www.duchennefoundation.org.au now.

 

Comment by Deb Robins on April 8, 2010 at 10:00am
Some Towards a Brighter Future Feb 2010 Conference presentations are up online now.
Comment by Tina & Darren Harris on December 15, 2009 at 1:10am
We are happy to become a member.
Comment by Angie Evans on November 20, 2009 at 9:23am
Hi everyone. My name is Angie and I live in Canada. Deb, are you the one who started Duchenne Foundation? In our country we seem to have a complete lack of cohesion with Duchenne families from coast to coast. I was inspired by Action Duchenne in the UK when I attended their conference a month or so. Now it seems you have done something similar in Australia. I have no idea where to start, any suggestions would be greatly appreciated!
Comment by michelle pomeroy on November 19, 2009 at 11:09pm
hi everyone also had ad on here in port lincoln sa. its great!! its got people talking and ask about my son jack xx we will be coming to sydney conference cant wait to meet some of you guys, Deb i dont know how you do all you do!! thanks for all the info i hope i get to meet you feb
Comment by Deb Robins on October 16, 2009 at 5:40am
Great michelle. We see it on HD Sport channel here, but not with the ticker tape of the Darling Habour Event. Thanks for letting us know it has airplay.
 

Members (22)

 
 
 

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