Aussies - Duchenne Foundation


Aussies - Duchenne Foundation

Duchenne Foundation can be found at

Join us to raise awareness in Australia.

Location: Australia
Members: 22
Latest Activity: Jan 26, 2016


Events - October 2009

Started by Deb Robins. Last reply by Deb Robins Oct 2, 2010. 3 Replies

National Registry

Started by Deb Robins. Last reply by Deb Robins Sep 20, 2009. 3 Replies

Clinical Trials

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Comment Wall


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Comment by Deb Robins on December 10, 2014 at 12:23am

Hi Parul

This group is a little inactive sorry. FB tends to take over nowadays for information dissemination and support. Please like our FB & Twitter page & sign up for our newsletter as many of our members tend to communicate largely through those channels online. Our Victorian families are starting to get a support group together, would you like me to put you in touch?  Send your email to  and I'll pass it along to the Victorians. From me, I'm happy to help, find out what I can for you, or network online if you prefer.  Stay loved.  Deb (Mum to Doug, 27) 

Comment by Deb Robins on August 22, 2012 at 6:16am

Comment by Deb Robins on May 28, 2012 at 3:45am
A researcher in Canberra is doing a study about the unmet needs of carers...Australians may like to participate. I don't think it is limited to Queenslanders.

The link to the survey is: ( Survey )

The link to the information sheet about the survey is: (Information Sheet)
Comment by Deb Robins on May 4, 2012 at 10:03am

Please vote for funding for a children's program at our joint national conference on the Gold Coast this coming October 4-6

Comment by Deb Robins on December 10, 2011 at 6:50am

Comment by Deb Robins on November 17, 2011 at 9:40am
Send this link to family & friends to support DF this Christmas
Comment by Deb Robins on July 10, 2011 at 8:12am
Please send survey to all? Esp Aussies but not exclusively -Klair wants all opinions.  Both partners fill out .
Comment by Deb Robins on March 1, 2011 at 1:40am

Change your bookmarks  no longer links to our new website address. You have to go straight to: now.


Comment by Deb Robins on April 8, 2010 at 10:00am
Some Towards a Brighter Future Feb 2010 Conference presentations are up online now.
Comment by Tina & Darren Harris on December 15, 2009 at 1:10am
We are happy to become a member.

Members (20)


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