Latest Activity: Jul 27
Started by Nicole Fry. Last reply by Kristin Linke Jul 27.
Started by Cathy Johnson. Last reply by Dawn Dillon May 12, 2016.
Started by Katie May 10, 2016.
Mom of 3: 1- 15 yr old female carrier, 2 -10yr & 6yr old with DMD. I am a carrier as well.
Why must we have such difficulty with getting things approved by insurance!!!!!
Any updates for point mutation on 46 chromosome please update me.
I'm interview home health aids for the first time. Does anyone have any advice? The aid will accompany James to school. This is all very new to me.
Does anyone have a health aid in school that you employ (vs. the school district)? My rising 5th grader goes to a private school that is requiring him to have an aid in order to return to school next year. I'm scrambling trying to find someone and then find someone to pay for it. The small school is good for him and I want to stay there if at all possible.
PPMD has launched a program – Risk/Benefit in Duchenne Therapies – to help inform the FDA and other government agencies, biopharmaceutical companies, and others about the treatment priorities and risk tolerance of the Duchenne community.
We’ve had a great response to our first survey, with more than 90 participants so far, but need a few more before we close it tomorrow.
If you are a parent or guardian of a child who is able to walk some, but is having a lot of difficulty, please consider taking our survey before 9 PM eastern tomorrow.
Thank you for your participation!
hi i have a son jacob that is 7. i am looking for parents that know where we are in the dmd.
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