REMINDER:  PERSONAL DMD STORIES GIVE ADVOCACY IMPACT!

 

PPMD's Advocacy Pre-Conference Webinar took place earlier today. 

Again the HUGE IMPACT of sharing our personal stories was emphasized - along with a photograph(s}. The climate in Washington, DC this year is especially challenging.

 

Even if you can't attend PPMD’s 2012 Advocacy conference in Washington, DC, there other ways to raise awareness and help get (and/or maintain) government support for DUCHENNE.

YOU WON'T EVEN HAVE TO LEAVE YOUR HOME!

  Here's how to do this without traveling.

  • EASIEST - You can sign-up for the Packet Drop Off (link provided below) where you can also fill out a brief survey form regarding your situation.  This is simple and quick -- select a photograph to include. This link will take you there (copy and paste both lines in browser): http://www.parentprojectmd.org/site/Survey?SURVEY_ID=6541&ACTIO...
  • IN-DEPTH - You can also create a more in-depth one-page flyer about your situation that can be included in the Drop Off Packets and delivered to your representatives by those who do go to Washington. The flyer telling your story can be duplicated for additional copies, easily sent as an e-mail attachment, and can be easily edited for updating and other Duchenne-related awareness and fund-raising purposes.  Visit link below to see a sample flyer.

      http://www.parentprojectmd.org/getactive                 (Scroll down and read especially Options #2 and #3.)

 

THE CLIMATE IN WASHINGTON IS CHALLENGING -- LET'S GIVE IT OUR ALL!

 

SHARING DMD PERSONAL STORIES CREATES A HUGE IMPACT.

PPMD's  goal this year is called 50 STATE CHALLENGE . This means we hope for Duchenne input from constituents from all 50 states and, hopefully, all congressional districts within each state.

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