All Discussions Tagged 'Pennsylvania' (4)

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DO IT FOR OUR BOYS - ADVOCACY FROM HOME

Dear Pennsylvanians, PA still has only 2 of our 19 districts represented in person for PPMD's Advocacy in Washington (February 25-27). Thos…

Started by Gail D. McVicker

0 Feb 13, 2012

OUR PERSONAL STORIES - A POWERFUL WEAPON

  Your Personal Story on a One Page Flyer PPMD is allowing me to help any family with Duchenne convert their personal story/photograph(s) i…

Started by Gail D. McVicker

0 Jan 30, 2012

Advocacy 2011 - Anyone Going?

  Is anyone going to Washington, DC from Pennsylvania to advocate with this new 2011 Congress? There is a good website with great informati…

Started by Gail D. McVicker

0 Jan 21, 2011

Resolution passed declaring the week of May 24, 2010 as "Duchenne Muscular Dystrophy Awareness Week in Pennsylvania.

I find this extremely encouraging -- does anyone have any ideas on how we can build on this in Pennsylvania? We need to take advantage of…

Started by Gail D. McVicker

0 May 14, 2010

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