Sort by:
Discussions | Replies | Latest Activity |
---|---|---|
Staff In need of a loaner pediatric power chair for a few weeksI have a family whose son’s chair is broken, and the DME had to order parts, which may take a while to arrive (Possibly a month) Neither th… Started by PPMD |
0 | Aug 5, 2014 |
Steriods or no steroids?My sone was diagnosed with DMD last year, his doctors at CHOP want him to start steroids, his father and I face been pushing off starting t… Started by Christina |
0 | Jun 12, 2014 |
Positive results with a new therapyMy son Lance has DMD. For the last year we have been doing an experimental therapy. Lance is the ONLY person in the country - probably t… Started by Christine Marie Pierce |
0 | Dec 14, 2013 |
PA NEEDS MORE CONSTITUENTS FOR PACKET DROP-OFFPENNSYLVANIA - Let's hear from Constituents from all 18 Districts There's still time for PA constituents to participate in PPMD's Packet D… Started by Gail D. McVicker |
1 |
Feb 6, 2013 Reply by Perlita & Gordy Hains |
ADVOCACY - PERSONAL DMD STORIES ADD IMPACTREMINDER: PERSONAL DMD STORIES GIVE ADVOCACY IMPACT! PPMD's Advocacy Pre-Conference Webinar took place earlier today. Again the HUGE IM… Started by Gail D. McVicker |
0 | Feb 21, 2012 |
what therapies/treatmentHi there I am new here and my son was daignosed with BMD a year ago. He is 3yrs old now. I have been waiting to ask this question somewher… Started by Evelyn |
8 |
Feb 17, 2012 Reply by Gail D. McVicker |
DO IT FOR OUR BOYS - ADVOCACY FROM HOMEDear Pennsylvanians, PA still has only 2 of our 19 districts represented in person for PPMD's Advocacy in Washington (February 25-27). Thos… Started by Gail D. McVicker |
0 | Feb 13, 2012 |
OUR PERSONAL STORIES - A POWERFUL WEAPONYour Personal Story on a One Page Flyer PPMD is allowing me to help any family with Duchenne convert their personal story/photograph(s) i… Started by Gail D. McVicker |
0 | Jan 30, 2012 |
The Pennsylvania Training Partnership for People with Disabilities and FamiliesFind statewide trainings you can use, for people with disabilities and families, at www.TheTrainingPartnership.org. Started by Paul Johnson |
0 | Mar 7, 2011 |
Advocacy 2011 - Anyone Going?Is anyone going to Washington, DC from Pennsylvania to advocate with this new 2011 Congress? There is a good website with great informati… Started by Gail D. McVicker |
0 | Jan 21, 2011 |
© 2019 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service