Group where families in the Pennsylvania or sorrounding area can colloborate
Location: Pennsylvania
Members: 45
Latest Activity: Feb 20, 2015
MySpace
Tweet
Congressional Representatives:
Senator Robert Casey
Senator Patrick Toomey
Representatives From Pennsylvania
Medical Assistance:
Office of Medical Assistance Programs
Housing: information on housing, remodeling, accessibility
VisitAbility PA
DisibilityInfo.Gov - Grants and Funding
Adaptions manual from Muscular Dystrophy Campaign
Resources: Other useful resources
Parent Education Network
Pennyslvania Council for Independant Living
Special Kids Network
The Mentor Parent Program
Started by PPMD Aug 5, 2014. 0 Replies 0 Favorites
I have a family whose son’s chair is broken, and the DME had to order parts, which may take a while to arrive (Possibly a month) Neither the DME nor the local MDA has a chair available. They have…Continue
Started by Christina Jun 12, 2014. 0 Replies 1 Favorite
My sone was diagnosed with DMD last year, his doctors at CHOP want him to start steroids, his father and I face been pushing off starting them because we don't see the benefit of them , there just…Continue
Started by Christine Marie Pierce Dec 14, 2013. 0 Replies 0 Favorites
My son Lance has DMD. For the last year we have been doing an experimental therapy. Lance is the ONLY person in the country - probably the world - to be trying this therapy. We are having what I…Continue
Started by Gail D. McVicker. Last reply by Perlita & Gordy Hains Feb 6, 2013. 1 Reply 0 Favorites
PENNSYLVANIA - Let's hear from Constituents from all 18 DistrictsThere's still time for PA constituents to participate in PPMD's Packet Drop Off taking place in Washington, DC next Monday and…Continue
Started by Gail D. McVicker Feb 21, 2012. 0 Replies 0 Favorites
REMINDER: PERSONAL DMD STORIES GIVE ADVOCACY IMPACT! PPMD's Advocacy Pre-Conference Webinar took place earlier today. Again the HUGE IMPACT of sharing our personal stories was emphasized - along…Continue
Started by Evelyn. Last reply by Gail D. McVicker Feb 17, 2012. 8 Replies 0 Favorites
Hi thereI am new here and my son was daignosed with BMD a year ago. He is 3yrs old now. I have been waiting to ask this question somewhere for a year. What therapy/treatment are you doing with your…Continue
Started by Gail D. McVicker Feb 13, 2012. 0 Replies 0 Favorites
Dear Pennsylvanians,PA still has only 2 of our 19 districts represented in person for PPMD's Advocacy in Washington (February 25-27). Those who are attending will be visiting districts other than…Continue
Tags: 50, STATE, CHALLENGE, 2012, Pennsylvania
Started by Gail D. McVicker Jan 30, 2012. 0 Replies 0 Favorites
Your Personal Story on a One Page FlyerPPMD is allowing me to help any family with Duchenne convert their personal story/photograph(s) into a concise one-page flyer (see attached sample). I have a…Continue
Tags: Pennsylvania, stories, personal, flyers, advocacy
Started by Paul Johnson Mar 7, 2011. 0 Replies 0 Favorites
Find statewide trainings you can use, for people with disabilities and families, at…Continue
Started by Gail D. McVicker Jan 21, 2011. 0 Replies 0 Favorites
Is anyone going to Washington, DC from Pennsylvania to advocate with this new 2011 Congress?There is a good website with great information about Advocating in Washington --…Continue
Tags: Pennsylvania, PA, advocacy
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service