PPMD Community



Discuss the use of steroids for Duchenne View Discussions

Deflazacort dosing schedule 7 Replies

Started by Lisa Tepper. Last reply by Peter Nov 6, 2016.

Deflazacort no longer available in the US? 7 Replies

Started by Shawn. Last reply by Shawn Sep 27, 2016.

Prednisone and weight gain 3 Replies

Started by Nita McGauran. Last reply by Jay Griffin Aug 27, 2016.


Discuss technological advances in the Duchenne field View Discussions

Dorsi-Lite 3 Replies

Started by amit gupta. Last reply by Bryan & Cari Sweet Nov 27, 2011.

Ways to setup a NIV system 7 Replies

Started by Ann Avery. Last reply by Deb Robins Oct 22, 2011.

What vents are your boys using? 4 Replies

Started by Mark Whiteley. Last reply by Jason Hubal Dec 10, 2010.

Recreation and Family Activities

This is a great place for anyone to list and talk about fun activities to do with your family or for your son to take part in. View Discussions

Foldable electric wheelchairs??

Started by Art Jun 20, 2016.


Started by Jay Griffin Mar 14, 2016.

MDA Camp 2 Replies

Started by Megan McGee. Last reply by Megan McGee Oct 2, 2015.

Robotics For MD 6 Replies

Started by Jack Thomas Ryan. Last reply by Jack Thomas Ryan Jan 14, 2015.


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