This is a reply to Jacobs Mommom:
There are quite a lot of young men with DMD, my son is 22 and was diagnosed at age 3 through genetic testing then and again just a few months ago with a deletion on exon 44. There is also a set of twin men age 51, in our area also with DMD. We know many DMD families with young men living fuller,active lives. Though I will say they face many challenges as well. Please do not give up hope. Many young DMD men are living longer.
Katherine M. Reynoldson said:Jacobs Mommom said:I just read about Brian myself and it is very sad to hear of losing another boy so young. We keep hearing that boys are living longer but it doesn't seem that way to me. It makes me wonder if those older boys/men were ever tested and were diagnosed with DMD because I know of a few of them and they said there were never actually tested.