I have a IEP meeting in school. Can some one please guide me to what to say in school to convince them to provide PT and OT?
I undersatnd that PT and OT are imp for our sons. But why would the school spend its budget in this?
The argument needs to be that it helps them to "better access the curriculum" for the school to spend the budget. They need to help with providing access the curriculum. So the extent to which special seating , daily stretching, pencil grips ,whatever, helps the student stay focused/comfortable, better engaged/involved, the better they can "access the curriculum". The school doesnt care about prevention, just access today. At least in California. However, this argument can go pretty far to in getting services and then once you have them, people are generally on board to help however is best for the child. good luck
Our son (9) was able to access the PT at school, more as a way to give him a chance to feel that he could "keep up" with some other children. It is tricky because I really do not want him to participate in a way that would cause him to be tired, etc. I feel that the only true benefit of the PT is to give him a much needed break from class. As for PT, our son is monitored by the school's occupational therapist. Having her actually work with him is not going to help. His writing and self-help skills simply are not going to improve. She makes suggestions to the teachers about how to help him function better in the classroom. She brought in an alphasmart and monitors his posture in his chair, etc.
If you are in California, your son will qualify for California Children's Services (CCS). They are better equipped to help in this area. If you aren't in CA, I am sure that most other states have similar services. Talk to your regular pediatrician.
We are in northshore school dist and they provide these services without question. His school has a swimming pool which is also a wonderful addition to his PT. He is in the 4th grade. A word of caution on some of these PT specialists that we uncovered in an iep meeting last year. Some not all are not clearly taught the pro's and con's when working with a child with DMD. To give you an example we found out that his PT at school who claims she knew everything about DMD had him on a balance ball where there is a rind around the ball and you have the child stand on the ring and try to balance on the ball (think of the planet Saturn). We ordered educational packets and gave them to the school and daycare to educate them on the specifics on the disease. Principal, teacher, teacher aids and all party's involved including his daycare were educated on what his disease is about and what is good for him and bad for him from a phycial activity perspective. Your child's doctor should be able to guide you in laws etc. depending on your state. Best of luck!
In the US there is a federal law that requires access to education for all students in a "least restrictive" manor. Special education has state a federal funds that are earmarked to partially fulfill this mandate. Accessing the curriculum includes safely getting to and from the classroom as well as supportive desk and chair. Physical Education can not be accessed by our boys and that is part of the curriculum. Physical therapy maintains range of motion, supports balance and symetry that allows our boys to do the best they can. PPMD has a CD and book for PTs. Our school district bought these resources because PT for dmd is contrary to traditional PT. Good luck with the IEP.