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Liissa thank you for thinking of us. We got prescription for Deflazacort and I ordered and received tablets from UK.
We have not even started to take steroids because he had to do vaccination and now we will wait for about one month and than we will start using steroids.
His dosage for Deflazacort will be 27mg a day, he has 29kg. Is this ok?
Liisa what supplements you give to your son and how many mg of them?
Thank you,
Andrea
Pozdrav
Ja i supruga imamo djecaka koji sad 21.02 puni 5godina koji ima Duchenovu distrofiju. Mi smo iz Bihaca BiH
Zanima nas vaša uskustva koje lijekove vas djecak koristi.
Nas djecak trenutno pije lijek pronizon svaki drugi dan iza 9 sati obavili smo genetsku analiza kojoj je potvrđeno da nas djecak ima duchenov oblik.
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