I live in Western PA and just had my 10 yr old son's appointment. As I browse through this site it has occurred to me that we don't know as much about our son's DMD as some other do. I really like our Dr. he is really nice but we never learn anything new we go there to maintain him and that is it. I'm feeling really frustrated because I browse on here, read Quest and I feel he should be telling us so much more. I just want to be sure I am doing everything I can for my son, as you all know. So my question is why are so many going to see Dr. Wong and am I right to feel we should be getting more? This past visit the Dr. was with us for MAYBE 15 min!!
Thank you for the help,