We urge the Food and Drug Administration (FDA) to use the Accelerated Approval pathway for approval and access to safe, effective therapies for Duchenne Muscular Dystrophy - the leading genetic killer of children that impacts 1 out of every 3,500 boys born in the United States. It's time for the FDA to Say Yes and make this the first generation of Duchenne survivors.
We need an average of 5,000 signatures daily.Thanks so much Jason for your regular update.
I hope this petition helps. It's definitely widened awareness across the country.
Good work,Jason,for the updates.Thanks everyone for the effort,time and other resources spent to get us where we are today.
Jason Darienzo said:
Thank you for putting up with my posts
Signatures needed by March 29, 2014 to reach goal of 100,0000
Total signatures on this petition100,016
what is thenext step when are we going to form the white house.kimmy
Why is only Eteplirsen mentioned in the petition? What about Ataluren, which is undergoing a totally superfluous Phase III Trial?