Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.

WE PETITION THE OBAMA ADMINISTRATION TO:

Urge the FDA to Say YES to Accelerated Approval for safe, effective therapies for children with Duchenne.

We urge the Food and Drug Administration (FDA) to use the Accelerated Approval pathway for approval and access to safe, effective therapies for Duchenne Muscular Dystrophy - the leading genetic killer of children that impacts 1 out of every 3,500 boys born in the United States. It's time for the FDA to Say Yes and make this the first generation of Duchenne survivors.

 

https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelera...

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All we need is 4 signatures for every kid with DMD in the US 

Short web address for Twitter    http://wh.gov/lEfaZ

 Signatures needed by March 29, 2014

67,863

Total signatures on this petition

32,137

If 3,000 people can get 34 people to sign we would reach the goal of 100,000

Short web address for Twitter    http://wh.gov/lEfaZ

Signatures needed by March 29, 2014

66,009

Total signatures on this petition

33,991

35k and climbing! An entire school district in Colorado is signing like crazy for a boy named Ryan.

Signatures needed by March 29, 2014

64,905

Total signatures on this petition

35,095

Signatures needed by March 29, 2014

62,538

Total signatures on this petition

37,462

Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.

https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelera...

or

The Race to YES

http://theracetoyes.org/

Mothers’ plea for quicker drug approval from FDA

http://www.foxbusiness.com/on-air/willis-report/videos#p/157870/v/3...

Pennsylvania Local news report on Duchene Petition

http://www.wjactv.com/news/features/top-stories/stories/one-mother-...

Halfway there

Signatures needed by March 29, 2014

49,719

Total signatures on this petition

50,281
Charley's Fund just posted the following on Facebook.  There was a local news report today in Pennsylvania today.  It seems if there are Duchenne families in the listed areas Charley's Fund can get them on tv to promote the Petition.  Does anyone know who might be willing to do this?  This could probably get the Petition to 100,000.
"Seeking families affected by Duchenne in these areas to do interview with local news stations about The Race to Yes. We will send you all the info you need and help you get ready! If you can do it, please email dmdaction@gmail.com and tell them where you live. THANK YOU!"
Birmingham - Anniston - Tuscaloosa , AL
Mobile - Pensacola, AL
San Francisco
Tampa - St. Petersburg
Augusta
Columbus, GA
Savannah - Hilton Head
Davenport - Moline
Lafayette, Louisiana
Lansing
Jackson, Mississippi
Hattiesburg - Laurel
Albany - Schenectady - Troy
Adams, Massachusetts
Greenville - New Bern - Washington
Raleigh - Durham - Fayetteville
Columbus, OH
Providence - New Bedford
Charleston, SC
Florence - Myrtle Beach
Spartanburg - Asheville - Anderson
Sioux Falls, SD
Frorence - Aberdeen, SD
Reliance - Pierre, SD
Rapid City, SD
Knoxville
Nashville
Tri-Cities (TN / VA)
Richmond - Petersburg
Roanoke - Lynchburg
Green Bay - Appleton

8 days to go.  Need 5500 signatures a day. 

Signatures needed by March 29, 2014 to reach goal of 100,000

43,598

Total signatures on this petition

56,402

In China, in order to advance the treatment of DMD, we have been voting, hoping to overcome the DMD for the human. Since then, so many children suffering from the disease are no longer crying, and  their parents are no longer taste the torment of Doom! We are parents of a  group of patients with DMD , we have been upheld. Love will never stop the pace!

Signatures needed by March 29, 2014 to reach goal of 100,000

36,587

Total signatures on this petition

63,413

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