We urge the Food and Drug Administration (FDA) to use the Accelerated Approval pathway for approval and access to safe, effective therapies for Duchenne Muscular Dystrophy - the leading genetic killer of children that impacts 1 out of every 3,500 boys born in the United States. It's time for the FDA to Say Yes and make this the first generation of Duchenne survivors.
https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelera...
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If 3,000 people can get 34 people to sign we would reach the goal of 100,000
Short web address for Twitter http://wh.gov/lEfaZ
35k and climbing! An entire school district in Colorado is signing like crazy for a boy named Ryan.
Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.
https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelera...
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The Race to YES
Jett Foundation Director of Outreach/Advocacy Jenn McNary and Jett Foundation CEO Christine McSherry on the push for FDA approval for a drug to treat Duchenne Muscular Distrophy.
http://www.foxbusiness.com/on-air/willis-report/videos#p/157870/v/3...
Pennsylvania Local news report on Duchene Petition
http://www.wjactv.com/news/features/top-stories/stories/one-mother-...
Halfway there
In China, in order to advance the treatment of DMD, we have been voting, hoping to overcome the DMD for the human. Since then, so many children suffering from the disease are no longer crying, and their parents are no longer taste the torment of Doom! We are parents of a group of patients with DMD , we have been upheld. Love will never stop the pace!
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