Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.
WE PETITION THE OBAMA ADMINISTRATION TO:
Urge the FDA to Say YES to Accelerated Approval for safe, effective therapies for children with Duchenne.
We urge the Food and Drug Administration (FDA) to use the Accelerated Approval pathway for approval and access to safe, effective therapies for Duchenne Muscular Dystrophy - the leading genetic killer of children that impacts 1 out of every 3,500 boys born in the United States. It's time for the FDA to Say Yes and make this the first generation of Duchenne survivors.
https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelera...
Replies to This Discussion
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Permalink Reply by Jason Darienzo on
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All we need is 4 signatures for every kid with DMD in the US
Short web address for Twitter http://wh.gov/lEfaZ
Signatures needed by March 29, 2014
67,863Total signatures on this petition
32,137
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If 3,000 people can get 34 people to sign we would reach the goal of 100,000
Short web address for Twitter http://wh.gov/lEfaZ
Signatures needed by March 29, 2014
66,009Total signatures on this petition
33,991
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35k and climbing! An entire school district in Colorado is signing like crazy for a boy named Ryan.
Signatures needed by March 29, 2014
64,905Total signatures on this petition
35,095
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Signatures needed by March 29, 2014
62,538Total signatures on this petition
37,462
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Whitehouse petition: Urge the FDA to Say YES to Accelerated Approval for children with Duchenne.
https://petitions.whitehouse.gov/petition/urge-fda-say-yes-accelera...
or
The Race to YES
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Mothers’ plea for quicker drug approval from FDA
http://www.foxbusiness.com/on-air/willis-report/videos#p/157870/v/3...
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Pennsylvania Local news report on Duchene Petition
http://www.wjactv.com/news/features/top-stories/stories/one-mother-...
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Halfway there
Signatures needed by March 29, 2014
49,719Total signatures on this petition
50,281
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Permalink Reply by Richard Darienzo on
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Charley's Fund just posted the following on Facebook. There was a local news report today in Pennsylvania today. It seems if there are Duchenne families in the listed areas Charley's Fund can get them on tv to promote the Petition. Does anyone know who might be willing to do this? This could probably get the Petition to 100,000."Seeking families affected by Duchenne in these areas to do interview with local news stations about The Race to Yes. We will send you all the info you need and help you get ready! If you can do it, please email dmdaction@gmail.com and tell them where you live. THANK YOU!"
Birmingham - Anniston - Tuscaloosa , AL
Mobile - Pensacola, AL
San Francisco
Tampa - St. Petersburg
Augusta
Columbus, GA
Savannah - Hilton Head
Davenport - Moline
Lafayette, Louisiana
Lansing
Jackson, Mississippi
Hattiesburg - Laurel
Albany - Schenectady - Troy
Adams, Massachusetts
Greenville - New Bern - Washington
Raleigh - Durham - Fayetteville
Columbus, OH
Providence - New Bedford
Charleston, SC
Florence - Myrtle Beach
Spartanburg - Asheville - Anderson
Sioux Falls, SD
Frorence - Aberdeen, SD
Reliance - Pierre, SD
Rapid City, SD
Knoxville
Nashville
Tri-Cities (TN / VA)
Richmond - Petersburg
Roanoke - Lynchburg
Green Bay - Appleton
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8 days to go. Need 5500 signatures a day.
Signatures needed by March 29, 2014 to reach goal of 100,000
43,598Total signatures on this petition
56,402
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Permalink Reply by David Chu on
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In China, in order to advance the treatment of DMD, we have been voting, hoping to overcome the DMD for the human. Since then, so many children suffering from the disease are no longer crying, and their parents are no longer taste the torment of Doom! We are parents of a group of patients with DMD , we have been upheld. Love will never stop the pace!
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Signatures needed by March 29, 2014 to reach goal of 100,000
36,587Total signatures on this petition
63,413
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