My son Alex (11 in April) is on daily pred and no longer walking. He can still stand with assistance, but for only about 1-2 seconds. His weight is high (120 lbs) due to the pred, diet, and the obvious lack of consistent exercise (though he swims in summer). I realize the steroids provide some strength to Alex, but I am beginning to wonder about the downsides of his loss of walking (i.e., weight gain, potential diabetes, etc.). Dieting has been difficult, but we try. My question is when do we stop his steroid usage? Will his remaining strength disappear once off the steroids? Will he begin to lose weight once off the steroids? Do we continue as is to help provide what remaining strength he does have and deal with the weight in other ways (i.e., stricter dieting)? Do we continue steroids for other muscles (hands, arms, etc.)? Does the rollercoaster trend downward at a faster rate once off? I am very interested in others experience and perspectives.