What is the cost of translarna?
What is the cost of translarna? Anybody have any idea??
Replies to This Discussion
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Permalink Reply by Trinh Nguyen on
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Cost in Germany:
1 box of 30 tablets 125mg : 3822 Euro
1 box of 30 tablets 250mg : 7588 Euro
1 box of 30 tablets 1000mg : 30180 Euro
Cost is sky-high.
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Permalink Reply by Elie Feghali on
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It is an unreasonable cost!!
Can anyone pay that price??
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I can't imagine who can pay.
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In my case i need for each day 8 tablets 250 mg and 1 tablet 1000 mg which means 3029.5 Euro per day!!!
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Hi Nadja,
My son has been in phase 3 - double blind and phase 3-extension. I guess he was in placebo group in phase 3 due to his decline. But since phase 3-extension (all take drug), the decline seems slow down, he almost does not fall.
Trinh
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Hello Peter.I trust you are well with your loved ones.How long is Translarna to be taken?For life or just for a period?Thanks.
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For life i think
wainaina muiruri said:Hello Peter.I trust you are well with your loved ones.How long is Translarna to be taken?For life or just for a period?Thanks.
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Yes, for life.
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Well,i think i talk for most of us when i say not many will afford that high a cost.But let us remain hopeful.
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Permalink Reply by Mena Shaher on
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Hello hope you are all well, Do you how kids outside EU and UK can get the drug plz? Thanks
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