What is the cost of translarna? Anybody have any idea??

Views: 5261

Reply to This

Replies to This Discussion

The cost in Europe about 3800 Euro, 30 sachets of Translarna 125 mg.

Cost in Germany:

1 box of 30 tablets 125mg : 3822 Euro

1 box of 30 tablets 250mg : 7588 Euro

1 box of 30 tablets 1000mg : 30180 Euro

Cost is sky-high.

It is an unreasonable cost!!

Can anyone pay that price??

I can't imagine who can pay.

In my case i need for each day 8 tablets 250 mg and 1 tablet 1000 mg which means 3029.5 Euro per day!!!

How does translarna work?

Hi Nadja,

My son has been in phase 3 - double blind and phase 3-extension. I guess he was in placebo group in phase 3 due to his decline. But since phase 3-extension (all take drug), the decline seems slow down, he almost does not fall.

Trinh

Hello Peter.I trust you are well with your loved ones.How long is Translarna to be taken?For life or just for a period?Thanks.

For life i think


wainaina muiruri said:

Hello Peter.I trust you are well with your loved ones.How long is Translarna to be taken?For life or just for a period?Thanks.

Yes, for life.

Well,i think i talk for most of us when i say not many will afford that high a cost.But let us remain hopeful.

Hello hope you are all well, Do you how kids outside EU and UK can get the drug plz? Thanks

Reply to Discussion

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service