Haven't heard of any studies about weather and DMD, we live in southern California desert where it can get VERY (113 in shade) hot but not normally with humidity, ours is a "dry heat". Our son is 11, my husband and I have discussed how difficult it must be to live in areas with more severe weather concerns. I can't imagine living in the snow, wind or rain and trying to function with a scooter and such. In summer we wear hats and sunglasses, swim (good for dmd) everyday from spring on, have a canopy cover for the scooter, use umbrellas for shade. We don't use sunscreen much on our son so he can get a dose of vitamin D. On extremely hot days we stay indoors with air conditioner on and play wii or watch movies. Almost all houses in our area have air conditioning, cars too. It comes as a standard item.
I think dmd is easier to manage while living here. Ice, snow and rain would make things really tough.
Thanks for all the responses. It's nice to know there are others observing the same situations, even though its unfortunate. I asked his doctor at childrens and he said it's possible, he related it to someone with arthritis how they have a higher level of discomforate in cold weather. Even though with have the highest respect for the doctors and much more for the scientists trying to find ways to cure these kids, sometimes first hand experience can provide the greatest advice or knowledge when you live with the disease day to day. Our son has developmental and speech delays which relates to his disease and we think a form of autism. We wish he could give us a clear story on what he feels rather than his consitant complaining that his legs hurt. Maybe if some of you that have kids the age of 9-14 with the DMD that don't have the developmental delay's could ask them how the cold weather effects their muscles in the winter or cold rainy times and what remedy's make them feel better. That would be great feedback for us.
Its been a while since I have been on here, I have been following PPMD on facebook, but here's one for you related to this discussion I started. Sometimes gut instinct works out for the good. We made the decision to try to give our son the best life he could have and decided to move out of Seattle (bothell). We moved to Allen,TX in November which is 30 mi. North of Dallas...Kind of like Mill Creek Area. Anyways, we now have a 4200 sq ft house with a flat driveway, one smal tiny step in to the house from the garage or level from the front door, all rooms on the ground floor with an upstairs which is a big media pool table room. Ramblers are so hard to find in the Seattle area and all the houses seem to have the rooms upstairs, this has worked out GREAT! So..Even better the warmer weather has made a tremendous impact on his muscles. He hardly ever complains about mucles cramps anymore, his legs stretches are so much easier because his legs are not so tight and cramped up and his flexibility puts a little spunk in to his step. We have an ingroung hot tub and pool that has worked well for him to relax and we are just starting to get in to the pool season. So far he has gone twice in the pool and its nice for him to get some good excercise.
Obviously this isnt medical advise or anything like that, but I thought I would share on the positive outcome so far.