Replies to This Discussion

Permalink Reply by lisa burke on March 24, 2013 at 8:24am

Hi Moein, I've never heard of this side-effect before, especially if he's been taking Idebenone for a while. Maybe the capsule is getting stuck down in his throat and causing involuntary heaving?

• ▶ Reply

Permalink Reply by amit gupta on March 25, 2013 at 9:56am

did you change the dosage, timing or the brand? he has been vomitting everyday for 4 months?

• ▶ Reply

Permalink Reply by Moein on March 25, 2013 at 12:44pm

Yes,I changed it to 500 mg.He has been vomiting for 4 months

• ▶ Reply

Permalink Reply by amit gupta on March 25, 2013 at 1:36pm

i have been giving 450 mg (3 capsules of 150 mg each) for about an year or so to my son who weighs 57 lb...i give one cap in the morning and 2 in the night....

 

maybe try staggering the dosage...

• ▶ Reply

Permalink Reply by David K on March 26, 2013 at 6:08am

We had problems with stomach pains in the beginning, but after making sure that he takes the idebenone directly after breakfast and together with Lactobacillus plantarum 299v in his morning coctail no such problems have existed. He is on Deflazacort as well.

He is around 50 lb and takes 500 mg idebenone each morning.

• ▶ Reply

Permalink Reply by Tammy on May 6, 2013 at 5:43pm

My nutritional doctor does not recommend Idebenone and told me to give my son a natural form of CoQ10 made using a Japanese method that is more bioavailable.  I give it to him in his yogurt.

• ▶ Reply

▶ Reply to Discussion