Are there any families taking this? If so, please provide us your feedback

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Hi Jay,

My son is not on anything yet.  Just turned 4, but our Dr. from Cincinnati wants to start deflazacort.  Still very hesitant to try since I am not a fan of steroids.  I would love to know about this drug.  

From what I understand, it works => current steriods but without the side effects. Phase 1 is about finished and they are pulling data
Did VPB15 work well in phase 1?
There is no data published yet

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