I didn't see a category that really fits this post... I was hoping for a "health issues" or similar category, but at any rate, here goes:

My 15 year old with DMD has been non-ambulatory for two years now. At his current stage he has trouble even sitting up from a prone position. He has lost a lot of of his range of motion, but still has no trouble feeding himself (if the food is held in the hand, or is bite-sized) and likes to throw a baseball.

His condition is complicated by several other issues such as autism, global delay, and emotional problems (i.e. OCD, anxiety disorder, night terrors and sleep panic attacks, etc, etc, etc...) so it is impossible at times to tell what the root source is of any particular issue (and of course many issues are a composite of sources).

At any rate, the past couple months he has been vomiting almost every morning. Is this a common trait of mid or late progression?

Another issue, not to be graphic, is related to his BMs. he's always had a lose stool, but he's also operated like clockwork, going every morning. However, as of late he'll go again at mid-day or the evening in addition to his morning BM. As with the vomiting this seemed to start quite spontaneously and instead of being sporadic is rather consistent.

I just don't know how concerned I should be.... is this typical progression or should we be discussing these issues with his doctor?

Views: 143

Reply to This

Replies to This Discussion

It never hurts to mention it to your doctor. I always ask when Wyatt has a change from his "normal".
I would definitely discuss with doctor. Could be a bug - where I live there's a bug with vomitting and diarhea, but may want to check just to be sure.
I would also check with the doctor. I've actually been dealing with morning vomiting myself. It's been determined to be ideopathic gastroparesis...my stomach doesn't empty fast enough. Also have a faulty gallbladder. Both can cause vomiting and bowel issues.
Vomiting can also sometimes be caused by shortness of breath. Has your son had a sleep study done and does he use nocturnal ventiliation like a bipap. The night terrors and sleep panic attacks could also be caused by a nocturnal ventiliation problem. A visit to a pulmonologist might be a good place to start.
Hi Curtis: I think you should talk with his doctor. I am not a doctor or nurse myself, but I know there are some viral things going around but it could be bacterial as well. My son, Mason, was having an issue a few months ago. We went to his primary care physician and they had us do a stool sample. It turned out to be nothing but viral but it took a little bit to go away. I don't know if you have noticed but it seems that our kids don't fight things off as fast as others. Let me know how he's doing. Good luck!
His doctor has ordered a handful of tests: urine, various stool, echo... I'll keep the discussion updated as I learn more. Thank you, everyone, for your input!
Just to provide an update... All of the tests came back negative, except for the ultrasound which has yet to be performed... we're in line at SickKids for that test (but due to autism/behavioural issues/etc. we're not even sure that test will work-out). Meanwhile, he's currently not vomiting every morning (only occasionally, such as once a couple weeks back) and the days with multiple BMs are more sporadic (last night yes, but it had been about a week since the prior incident).

I'm still somewhat concerned, so we continue to monitor, log, and await the appointment at SickKids....
Hi

Pulmonary and GI track issues come to mind. My son had multiple BMs and progressed to vomiting. After 6 weeks in the hospital he was diagnosed with ulcerated colitus. Get both areas checked out...something is out of line. This must be very challenging for you and your son. This disease is not easy.

Karen (Erik 17)
Latest update, for those following this:

The last of the non-invasive tests were done, and my wife took him to see a gastrointerologist. The summary is that after all the tests they can't find anything specific that's a problem (this is a good thing). The specialist thinks that there may have been a viral issue, and feels it could take a couple months for the GI to return to "normal" (which for him has always been one very lose BM in the mornings).

The vomiting has gone away, and there are occasional irregular BMs still. We must keep in mind, however, that DMD isn't the only issue -- he's also got generalized anxiety disorder, he's on the autistic spectrum, and other issues which could also contribute to irregular BMs. So for now, we're just watching and waiting. With luck he'll be back to "normal" soon!

Reply to Discussion

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2022   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service