Replies to This Discussion

Permalink Reply by Terry Porcaro on December 1, 2010 at 3:21pm

Thank you Cheryl, I appreciate this. Please "friend" me on facebook. I'm listed on facebook as Theresa Bizzaro Porcaro.


cheryl cliff said:

Aren't you one of my friends on fb terry? If not, I'll look for you. You are welcome to any and all information I can get my hands on.
Terry Porcaro said:

Where do you go on Facebook to find DMD related information? When I go onto PPMD's facebook site, I don't seem to find anything more than I see on this site. I feel a little out of the loop as to where to find the best info lately.

Tina said:

Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.

• ▶ Reply

Permalink Reply by Jon Moulton on December 1, 2010 at 6:08pm

I too miss hearing from the TrialServe group and hope Robin is doing OK. I still post exon-skipping papers to the Muscular Dystrophy group on ResearchGate (http://www.researchgate.net/) and often also to Facebook as "Jon D. Moulton".

• ▶ Reply

Permalink Reply by BOZ4J on December 5, 2010 at 12:11am

Wow,DMD life gets complicated. I would miss Trialserve. I guess 5 years after diagnosis (or so) is enough to turn marriages around.

• ▶ Reply

▶ Reply to Discussion

• ‹ Previous
• 1
• 2
• Next ›
• Page