Trial serve website
Does anyone know what happened to Trial serve site?
Thanks,
Amrit
Thanks,
Amrit
Replies to This Discussion
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Permalink Reply by Felix Bettelheim on
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No - I was surprised that it disappeared too. I tried to email Robin Sharp's address but it came back as unrecognised. It's a great pity as the site contained a wealth of useful information and links to papers etc.
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Permalink Reply by MarcosDad on
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I got in touch with Robin and he said it was ok to share his message...
I'm OK. Since the divorce I've been so busy. I really don't have time any more to work on things.my new girlfriend and the kids take up alot of my time. I have back ups of the trialserve database. I've just finished working at HSBC looking after all the credit derivatives from the financial crisis. I'm taking a month off and Im going to hand over the Action Duchenne database to Nick. Please feel free to pass this message on. My new email is javelin@hotmail.co.uk.
Robin
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Permalink Reply by MitchellsDad on
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MarcosDad said:I got in touch with Robin and he said it was ok to share his message...
I'm OK. Since the divorce I've been so busy. I really don't have time any more to work on things.my new girlfriend and the kids take up alot of my time. I have back ups of the trialserve database. I've just finished working at HSBC looking after all the credit derivatives from the financial crisis. I'm taking a month off and Im going to hand over the Action Duchenne database to Nick. Please feel free to pass this message on. My new email is javelin@hotmail.co.uk.
Robin
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I'm really sorry to hear about Robin, and dissapointed to hear about about the trialserve website. It really was a wealth of information.
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Permalink Reply by Tina on
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I don't know about anybody else but I find it difficult to find my way around the Action Duchenne website. This is most unfortunate news. I kept alot of my running updates (vit. d issues) on the TS website as well and referred back to them from time to time.
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Glen, are you on facebook? You can find updated DMD research news on fb these days.
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Hi Tina,
Could you point me towards the FaceBook page please? I am on Facebook too.
Thanks,
Felix
Tina said:Glen, are you on facebook? You can find updated DMD research news on fb these days.
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Permalink Reply by Ofelia Marin on
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So sorry to hear...that was a great site, the best I found so far. I am friends with Robin on FB now.
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Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.
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Thanks Tina - We are now friends on FaceBook!
Tina said:Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.
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Where do you go on Facebook to find DMD related information? When I go onto PPMD's facebook site, I don't seem to find anything more than I see on this site. I feel a little out of the loop as to where to find the best info lately.
Tina said:Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.
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Permalink Reply by cheryl cliff on
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Aren't you one of my friends on fb terry? If not, I'll look for you. You are welcome to any and all information I can get my hands on.
Terry Porcaro said:
Where do you go on Facebook to find DMD related information? When I go onto PPMD's facebook site, I don't seem to find anything more than I see on this site. I feel a little out of the loop as to where to find the best info lately.
Tina said:Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.
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