Does anyone know what happened to Trial serve site?
Thanks,
Amrit

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No - I was surprised that it disappeared too. I tried to email Robin Sharp's address but it came back as unrecognised. It's a great pity as the site contained a wealth of useful information and links to papers etc.
I got in touch with Robin and he said it was ok to share his message...

I'm OK. Since the divorce I've been so busy. I really don't have time any more to work on things.my new girlfriend and the kids take up alot of my time. I have back ups of the trialserve database. I've just finished working at HSBC looking after all the credit derivatives from the financial crisis. I'm taking a month off and Im going to hand over the Action Duchenne database to Nick. Please feel free to pass this message on. My new email is javelin@hotmail.co.uk.

Robin


MarcosDad said:
I got in touch with Robin and he said it was ok to share his message...

I'm OK. Since the divorce I've been so busy. I really don't have time any more to work on things.my new girlfriend and the kids take up alot of my time. I have back ups of the trialserve database. I've just finished working at HSBC looking after all the credit derivatives from the financial crisis. I'm taking a month off and Im going to hand over the Action Duchenne database to Nick. Please feel free to pass this message on. My new email is javelin@hotmail.co.uk.

Robin
I'm really sorry to hear about Robin, and dissapointed to hear about about the trialserve website. It really was a wealth of information.
I don't know about anybody else but I find it difficult to find my way around the Action Duchenne website. This is most unfortunate news. I kept alot of my running updates (vit. d issues) on the TS website as well and referred back to them from time to time.
Glen, are you on facebook? You can find updated DMD research news on fb these days.
Hi Tina,

Could you point me towards the FaceBook page please? I am on Facebook too.

Thanks,

Felix

Tina said:
Glen, are you on facebook? You can find updated DMD research news on fb these days.
So sorry to hear...that was a great site, the best I found so far. I am friends with Robin on FB now.
Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.
Thanks Tina - We are now friends on FaceBook!

Tina said:
Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.

Where do you go on Facebook to find DMD related information? When I go onto PPMD's facebook site, I don't seem to find anything more than I see on this site. I feel a little out of the loop as to where to find the best info lately.

Tina said:
Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.

Aren't you one of my friends on fb terry? If not, I'll look for you. You are welcome to any and all information I can get my hands on.
Terry Porcaro said:

Where do you go on Facebook to find DMD related information? When I go onto PPMD's facebook site, I don't seem to find anything more than I see on this site. I feel a little out of the loop as to where to find the best info lately.

Tina said:
Ok Felix, I sent a friend request on facebook. I hope that was okay. I try to "share" DMD research related information on facebook. This seems to be the growing place where to find DMD info anymore. I am especially interested in cardiac and bone health as well and post info on those topics as well.

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