I have never been patient and these last 3 weeks have been full of anxiety. Still have another 3 to 5 weeks for genetic testing to come in.
My son started PT and so far that is going well. He is doing good with the exercises and stretches. The PT said most of his issues are caused by his lack of ankle flexibility. He is getting hinged day AFO's and night splints. He has even learned how to stand up without putting his one hand on his thigh to straighten his back.
We will continue to bring him to his weekly PT and work with him at home. Are there any other doctor's I should bring him to that may be able to run other tests on him in the meantime that can narrow his diagnosis down? We don't have history of Duchenne in our family. He had some symptoms like his leg muscle weakness and ankle contracture but he doesn't walk on his tip toes and the gower is being corrected with PT.
Sorry to go on but still trying to wrap my brain around this.