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I am a mom who's son is also recently diagnosed (10 months), the funny thing is I am also a therapist that is specializing in crisis, specifically grief and loss. Despite my education and profession, I too, of course, have difficulty coping. How could anyone not? I think it's important to remember that we all have different ways of coping, and certainly our limit of what we can handle. The good thing is to be aware of what your limitations are and that you take each challenge as a seperate event. The crap part of this all is that our journey with DMD will be a life-time of learning to cope with each new thing, each and every day.
Mindy, I am sad to hear that your experience with counseling only left you feeling worse. Please don't generalize that experience to every counselor. Often people seek the 'wrong' counselor for THEM and truth is, not every counselor is well educated about a certain area (grief) and of course there are just bad counselors. There are also different psychological fields that are better suited to providing counseling. A psychiatrist is an MD, most often best suited to the medical or neurological aspects (including prescribing meds), a Social Worker or LCSW (which allows them to counsel) often is focused on the family as a unit or sort of social psychology, and an LPC (licensed professional counselor) will be focused on specific therapy or technique and mental illness. (Please know this is a VERY generalized perception of each field! and will vary with each person's training!) You need to find someone who has a specific interest or background in grief, or exactly what you said will happen..they make you cry and send you home thinking they did a job well done. As good counselor should be defined as someone that is not only there to listen, but someone that can help you develop skills to cope better with anything in life! I don't mean to get on a little soap box about it, but it saddens me to know that MANY people give up on counseling when they may really benefit from it and a counselor that KNOWS what they are doing.
For me, unfortunatly, there are no other counselors in my area that specialize in grief...I'm it. So, I usually call friends/other counselors that are good at their jobs when I need to...and, I come here, because for me talking with parents that share my sorrows and know what the road ahead looks like is my therapy. So, not as a counselor, but as another mom, I am always here if you need it!
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