That's very kind of you - I really appreciate it. I will definitely be in touch. What area of the country are you in?
We are living during a time where we are witnessing a bio-medical revolution. What we used to call drugs is ancient technology. We live during a time were we can "play God", scary as it is, it gives us the knowledge on how we are built and how we can be fixed. I'm not sure if this is a good thing or bad even if it does cure my son someday, at what cost to our civilization - we don't know - and that is frightening. Will we engineer our kids, pick from a menu when we are ready to be parents? Will many generations of this kind of "ala carte" genetics cause the gene pool to deminish to a manageable number of genes so we all look and act alot alike? This is all feasible with the technology that will cure our kids someday.
On the bright side we may actually live to see the cure for Duchenne. Something that my first neurologist balked at stating a cure is impossible - that was only 2.5 years ago. Now people are realizing that technology is moving rather quickly and it is exponentially getting bigger as more is discovered - no different than the industrial revolution. The technology is being worked on from all angles, not just by Duchenne researchers, but cancer, diabetes, every genetic induced ailment feeds into this revolution. Another 2.5 years will be totally different than today, alot different, 5 years you couldn't even imagine it now what it will be like and what they will have discovered.
This is something that you can hope for, something that is not science fiction but fact, we will cure Duchenne, no doubt about it.