For those that have their son in any kind of aquatic therapy, what do they do?  Is there a good website somewhere that could give me ideas on what to do with Sam in the pool?  What about pool depth?  Does the boy need to be able to touch bottom? 

Thanks!!  We have an aquatic center here in our school system now and I'm trying to work something out with them to get Sam in the water.  Oh, and what about temp?  They told me the temp is kept at 80.  Is that too cold?

Views: 653

Reply to This

Replies to This Discussion

Jon had pool therapy a few years ago at a non-profit orthopedic clinic. The pool was fairly shallow, he could stand up even in the deeper end. It was kept very warm, about 92 degrees I believe. He would walk or swim laps depending on how he felt, there was even a boy who was no longer walking that could walk in the pool. They did stretching and breathing exercises, flipping a little plastic ball that looked like Saturn by breathing on it or diving for rings. There were only 3 boys with one PT and a PT assistant. If there was some free time they would play volleyball or basketball. They did rest in between exercises. I think the sessions were only 30 minutes if I remember right. They also rode around the pool straddling those foam noodles like horses, it was good for their trunk muscles and balance.

Susan
We did pool therapy, but it was with an inexperienced PT. The water was full of geriatric patients that didnt appreciate a little boy who splashes. The water was too warm (90)and it was during school. When Kian was done, all he wanted to do was nap. We live in a very rural area. I recieved and email from an experienced DMD PT, who has a great pool program. This is her email...
jennifer@wavetherapies

Hope this helps

Christine
Hi Laurie and any other interested parents,
I am a PT and this subject has been brought up by many parents that I have contact with. I was a swim instructor, then an aquatic therapist and now work with boys with DMD. In response to the many questions surrounding swimming, I wrote a short handout for parents and swim instructors to better understand swimming when it comes to DMD. I can send it to you if you forward me your email address. I am currently out of town and will send it as soon as I return.

I hope it helps,
Jennifer Wallace, PT

www.jenniferwallacept.com
jenniferwallacept@sbcglobal.net
That would be great!! My email is abbyplustwins at gmail dot com.

Jennifer Wallace said:
Hi Laurie and any other interested parents,
I am a PT and this subject has been brought up by many parents that I have contact with. I was a swim instructor, then an aquatic therapist and now work with boys with DMD. In response to the many questions surrounding swimming, I wrote a short handout for parents and swim instructors to better understand swimming when it comes to DMD. I can send it to you if you forward me your email address. I am currently out of town and will send it as soon as I return.

I hope it helps,
Jennifer Wallace, PT

www.jenniferwallacept.com
jenniferwallacept@sbcglobal.net
Hi Jennifer: I would appreciate it very much if you could e-mail your handout to me also. My daughter has an above ground pool in her yard, and would benefit greatly by your help. Thank you, Terry Porcaro, Grandmother to Cole (5) and Jack (almost 4).
My e-mail address is: terryporcaro@optonline.net




Jennifer Wallace said:
Hi Laurie and any other interested parents,
I am a PT and this subject has been brought up by many parents that I have contact with. I was a swim instructor, then an aquatic therapist and now work with boys with DMD. In response to the many questions surrounding swimming, I wrote a short handout for parents and swim instructors to better understand swimming when it comes to DMD. I can send it to you if you forward me your email address. I am currently out of town and will send it as soon as I return.

I hope it helps,
Jennifer Wallace, PT

www.jenniferwallacept.com
jenniferwallacept@sbcglobal.net
Hi Jennifer
I am also interested in the handout. My e-mail is ginamanning@comcast.net.
Thank you
Gina
Add me to the list, please. :)

ronnicat@hotmail.com
I have been giving my son swim lessons since he was four months old. He was swimming even before his diagnosis and I believe it did wonders for him. Curently my son Jacob is 5 years old and can swim on his own. We do private swim lessons through the YMCA. He is taught by a cute high school girl that does an excellent job with him. She has no PT training, but works with him on basic swimming techniques. I figure as long as he is in the water, learning to move his body like a swimmer, it could only be doing a good thing. When he gets tired, he rests. When he's ready again, off he goes. I think swimming is excellent because Jacob gets to feel weightless, I imagine that most of the time he feels like he walks around with weights on his legs. In the water he is free from the sensation of feeling heavy. I don't think one needs an expensive PT program for kids with DMD. If their in the water having fun, moving their bodies in ways they can't out of the water, and also moving in the water as they would out of it: that can all only be good for their bodies. We pay 160.00 for 8, 1/2 hour lessons. Which is by far cheaper than paying for a PT. Jacob loves the water, and he is doing awesome in it! I hope this encourages you.
Jennifer Wallace said:
Hi Laurie and any other interested parents,
I am a PT and this subject has been brought up by many parents that I have contact with. I was a swim instructor, then an aquatic therapist and now work with boys with DMD. In response to the many questions surrounding swimming, I wrote a short handout for parents and swim instructors to better understand swimming when it comes to DMD. I can send it to you if you forward me your email address. I am currently out of town and will send it as soon as I return.

I hope it helps,
Jennifer Wallace, PT

www.jenniferwallacept.com
jenniferwallacept@sbcglobal.net
Thank you so much Jennifer--my e-mail is jbhaswell@comcast.net

Joanne Haswell said:
Jennifer Wallace said:
Hi Laurie and any other interested parents,
I am a PT and this subject has been brought up by many parents that I have contact with. I was a swim instructor, then an aquatic therapist and now work with boys with DMD. In response to the many questions surrounding swimming, I wrote a short handout for parents and swim instructors to better understand swimming when it comes to DMD. I can send it to you if you forward me your email address. I am currently out of town and will send it as soon as I return.

I hope it helps,
Jennifer Wallace, PT

www.jenniferwallacept.com
jenniferwallacept@sbcglobal.net
could yousend me the handout also, my son doe swimming with he msu students in dept of kinesiology, and their lab is swimming with people with disabilities, we also get todo special olympics with the program. it really is a great program but it would be nice to have specific things foe them. sarasavalli@yahoo.com
Hi Jennifer,

It was really great meeting you at the CureDuchenne meeting a few weeks ago. You might want to consider having PPMD post your handout for all parents to review at this thread or somewhere else. If you contact Ryan or Kimberly at PPMD they can guide you on if & how you can do this, might save some time. Can't wait to have you begin work with my son Alexander.
Cheryl Cliff
Riverside

Reply to Discussion

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service