Could I get some feedback on what kind of supplements and herbs you may be giving your boys. Our Son takes Deflazacort, CoQ10, Calcium, Vitamin D, Fosamax. Are there other things that you may recommend that are working for your sons?
Thank you
Cinni
Tags:
one quick note ...we have recently become aware that if your child is going to participate in a clinical trial ( specifically exon skipping as we have 2 sons with exon 52 deletion and can participate in upcoming trials) they dont want the child to be on suppliments such as coq10, idebenone, protandum, etc, for 6 mos pre trial... we have stopped those as preparation, our dr, dr wong at cinci childrens recomended we do so as preparation for possible enrollment.
© 2022 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service