Hey, all. My son is six and has noticeable lordosis. Just tonight, an acquaintance who is an orthopedic surgeon and familiar with DMD, recommended that my son may need to have a pediatric orthopedic surgeon start following him. He mentioned possible spinal fusion for the lordosis. This has set me in a tale spin tonight. First of all, I appreciate this doctor's interest and his willingness to "talk shop" when we run into each other at our children's school functions. He has been very helpful. Back to the tale spin . . . I guess I've always thought spinal fusion was only for scoliosis and usually after the boys are non-ambulatory. So, I have lots of questions for all of you. Has anyone had spinal fusion for lordosis? Has anyone had spinal fusion while still ambulatory? What have you done to combat or counteract or deal with lordosis? As I mentioned, my son's lordosis is quite noticeable and I am concerned about it. One PT had recommended compression clothes to give him more support. We purchased them, and he wore them under his clothes for awhile. Now, he says he doesn't want to wear them because they feel too heavy. I'm not really sure how helpful they were in the first place. I appreciate any information you can give me.
Danelle