My son Roland is almost 13 and in the 6th grade.  He has been going to Speech therapy at school since Kindergarten.  His Speech Therapist called me today concerned with his attitude and regression in speech.  My first though and suggestion was that his muscles might be getting weaker and affecting his speech.  She very quickly and rudely told me that had nothing to do with it. 

I am wondering if anyone else has had experience with this?

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That WAS rude! But I think she was right that his DMD probaby had nothing to do with it as far as muscle strength goes. But many of our sons do have learning challenges including speech problems. Does your son have some learning difficulties or autistic tendencies or been tested to find out if he has? I will be interested to read other parents comments.
Would you feel comfortable telling us exactically what your son went to a speech therapist for? The reason I am asking is because my son doesn't studder, but he does repeat his sentences especially at the beginning of each sentence. It can take forever for him to finish what he wants to say sometimes. Not sure what thats all about but just wondering if it is similar to what you are dealing with.
Cheryl,
My son does exactly what you are describing with speech as well..
mmmm Karen, has anybody told you specifically what it means or how it happens? Are you getting help for this and if so what? Just wondering what, if anything I should be doing. Thanks! I know how busy you are!!!

Karen Barnett said:
Cheryl,
My son does exactly what you are describing with speech as well..
My son is 4, will be 5 in June. He has been going to speech for about a year now. He just recently started to studder and repeat his first word of a sentence over and over and over as well. It is very frustrating for him to the point that sometimes he will get so "stuck" on the first word of his sentence, he will give up or throw a toy. It is very hard for me to watch. His therapist says sometimes that has to do with language growth, where they have spurts in development and their minds and mouths can not get together on speaking. I am very worried about this because it is affecting my son in many ways from frustration and anger issues to the point he is beginning to avoid those words and sounds that cause him to get "stuck" more often. I am curious as to if anyone has any advice or information on this as well.
My son has been "doing" speech therapy for about four years now, and when he first started he was getting stuck as well. He's still got plenty of work in front of him speech-wise (he's 8 now) but he got over the "stuck" thing long enough ago that I'd forgotten until you mentioned it. :) I clearly recall his frustration...and how hard it was to train my husband not to draw attention to the issue by saying "SLOW DOWN, BUDDY!!" because the therapists were all concerned that to positively enforce it by attracting attention to it would be to encourage him to continue the behavior.

I'll bet your son will get past this with help too. It's hard to watch, but like I said...I'd actually forgotten, so what seems traumatic at the time...can be gotten past.

{{{HUGS}}}
Interesting theory that stuttering could be a result of gene damage : http://www.cnn.com/2010/HEALTH/02/10/stuttering.genes.cell/?hpt=Mid
While DMD gene damage/mutation is not mentioned, it makes you wonder if there is somehow a connection.
Veronica Hinton studies cognitive development in guys with dmd. She is at Columbia. I wonder if she has run across this repeating of the first word (phrase) and what she attributes it to.

My son was in speech therapy for about 2 years. He hated it. Part of the issue was he has a large tongue in a small pallet. Many guys have this. Well that isn't going to change much with therapy. I decided to pick my therapuetic battles and took him out of speech. He had 2-3 sounds he was working on...he can communicate well enough.
My son does this too...always the first 2 words of the sentence and it is definitely NOT a stutter.

cheryl cliff said:
Would you feel comfortable telling us exactically what your son went to a speech therapist for? The reason I am asking is because my son doesn't studder, but he does repeat his sentences especially at the beginning of each sentence. It can take forever for him to finish what he wants to say sometimes. Not sure what thats all about but just wondering if it is similar to what you are dealing with.

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