PPMD Community

SOLLY

ON FRIDAY 28 AUGUST 2009 WE LOST MY BELOVED NEPHEW SULEMAN SAEED. HE WAS 16 YRS OLD.AFTER 5 WKS IN ICU, HE CAME HOME ON A VENTILATOR BUT SADLY AFTER 10 DAYS HE LOST HIS LIFE TO DMD. WE MISS HIM TERRIBLY. HE WILL LIVE IN OUR HEARTS FOREVER. THE PAIN OF LOSING A CHILD TO DMD IS UNBEARABLE. MY PRAYERS AND THOUGHTS ARE WITH ALL THOSE PARENTS AND KIDS FIGHTING THIS DREADED DISEASE. HOPE THEY FIND A CURE SOON.

Favorite

0 members favorited this

▶ Reply to This

Replies to This Discussion

Permalink Reply by cheryl cliff on September 26, 2009 at 10:57am

Very sad to hear of another boy dying. Sending prayers of solace to you and your family right now.

▶ Reply

Permalink Reply by vilma rodriguez on January 27, 2010 at 8:45am

Remember his courage and his positive attitude no matter the situation he was in.This boys are a special blessing that teaches us to appreciate life and live like if today was our last day enjoying every moment that we can and also to be strong in the inevitable, his memory will help you go on. My prayers are with you and your family

▶ Reply

Permalink Reply by SHAAZIA MOSSIM SAEED on January 27, 2010 at 9:03am

THANK YOU, ALL.

vilma rodriguez said:

Remember his courage and his positive attitude no matter the situation he was in.This boys are a special blessing that teaches us to appreciate life and live like if today was our last day enjoying every moment that we can and also to be strong in the inevitable, his memory will help you go on. My prayers are with you and your family

▶ Reply

Permalink Reply by sharon Wilmot on January 28, 2010 at 8:34pm

I am so very sorry for your loss. My heart goes out to you.

SHAAZIA MOSSIM SAEED said:

THANK YOU, ALL.

vilma rodriguez said:
Remember his courage and his positive attitude no matter the situation he was in.This boys are a special blessing that teaches us to appreciate life and live like if today was our last day enjoying every moment that we can and also to be strong in the inevitable, his memory will help you go on. My prayers are with you and your family

▶ Reply

Permalink Reply by JoAnne Powell on February 15, 2010 at 11:59am

I am so sorry for your family to have to go through this loss and hurt. I will put you all in my prayers. We are all together on this journey of Duchenne so know your family is being thought of and prayed for during this hard time. God bless you!!!