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This is such a needed topic. My daughter is going to be 12 next month...DMD affects the whole family in many different ways. If anyone has a family member that would want to make friends with Alicia, that would be great??? When Alicia was very little she just told people Josh had broken legs...just before his tranplant it all hit her like a ton of bricks. She adjusts well however it would be nice for her to have someone, her age, who is coping with the same.
Tammy
Is your daughter on Facebook? I started a siblings of DMD group there. It is not real active, but several teenage siblings have joined....Tell her to look for it and ask and I will grant her permission to join. For privacy/security, I have kept the group private. She could connect ther with others kids...
Lori
I think this is something my daughter would like to join. What is the name of the group?
Thanks
Lori Ware said:Is your daughter on Facebook? I started a siblings of DMD group there. It is not real active, but several teenage siblings have joined....Tell her to look for it and ask and I will grant her permission to join. For privacy/security, I have kept the group private. She could connect ther with others kids...
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