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Permalink Reply by Melanie on May 2, 2010 at 4:41pm

Melanie said:

I haven't heard whether the entire brand had discontinued, but I do know that they had phased out their 1 mg dosage a fair time ago, and I was led to be believe that they were doing the same with the 6 mg dosage when I ordered Aaron's medication last summer. We don't have any experience with the 30 mg, but I got the feeling that Shire might've been getting out of Deflazacort entirely. Maybe someone else knows for sure.

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Permalink Reply by John R Henderson on May 7, 2010 at 9:07am

Hi,

Just for info. my 5 year old - based in the U.K. - is also on Deflazacort; the manufacturer is Sanofi-Aventis, and the tablets are 6mg size (trade name Calcort).

I'm not sure where Shire source theirs from or even whether they manufacture it themselves. However if Shire can't supply you might try Sanofi-Aventis as it's one of the big European pharmaceutical companies - so I guess you should be able to find a supplier who can obtain it from them if necessary ?

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