I am still so thankful that Jared is still so ambulatory. We are truly blessed by this fact and so I really cannot complain. I have been so torn about what we were recently told in Cincinnati and need some real advice from you parents that have already been through this. When Jared was first diagnosed, the Dr's at UCLA told us that Jared should walk and run as much as possible and do whatever he wants. Of course, I have noticed more leg pain and more tiredness, but we just try to get him to listen to his body, something of which he still needs to learn to conserve his energy. They felt that keeping him doing while he still can was the best thing. When we went to see Dr. Wong, the PT told us that Jared should never run in PE, except maybe one lap if he had too, and to do as little walking and running to conserve his energy and his muscles, since they will not rebuild and that we should consider a scooter for getting around and keeping up with his friends. So, we have two extreme opinions and it makes it hard, because how do you tell a child he can't run. Again, listen to me, as I feel bad for even bringing this up because we are greatful that he still is ambulatory. But, honestly, I don't know what is best for him now. Should we let him walk and run without a care in the world and then let the bomb drop when he can't anymore? How do we know since maybe he has some dystrophin in there to help since he has BMD? The other hard part of all this is people honestly don't believe us since he looks like a normal kid. They don't see when he is in pain and needs his legs rubbed. They don't see when we need to put him in a wheelchair because his legs have given out-thankfully that is rare. Thank you for listening and any suggestions would be appreciated.