Does anyone else feel that their son is jumpy at night. No matter what I try and cannot get Neel (2) to settle down at night. I don't know if maybe he's got muscle aches or what it is. But he constantly rolls all over, sits up and literally throws himself against the pillows. Just wanted to see if other boys experience this as well and if so what you may have done to make your son more comfortable.

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James is a really good sleeper and settles down easily, sleeping from 7pm till 7am. However,he doens't do well lying in one spot, lying head to toe in bed. He ends up lying in all different directions in his bed, and if it were a normal bed he would definitely fall out of it onto the floor. Luckily, he has a Little Tykes racing car bed, with raised sides so he is pretty much enclosed all around. Whenever we go away, we either need toddler rails or to push a desk or chairs up to the side of the bed so he doesn't fall out. He has fallen out a few times, so we take precautions to guard against him really getting injured. Just prior to moving to England, he fell out of bed and the top of his ear hit the aluminium windowsill, slicing straight through the cartilage and causing him to need 5 stitches to put the cartilage back togetehr! So we don't take chances now!

So to answer your question, I am not in the room to watch James sleep but based on where he ends up in the bed, I would say he jumps and moves around A LOT!
My son, Robert, is 16 months old. He does exactly what Sharyn described here. I just ordered a bed for his room and now I am having second thoughts. We might need something similar to James's bed.


Sharyn Thompson said:
James is a really good sleeper and settles down easily, sleeping from 7pm till 7am. However,he doens't do well lying in one spot, lying head to toe in bed. He ends up lying in all different directions in his bed, and if it were a normal bed he would definitely fall out of it onto the floor. Luckily, he has a Little Tykes racing car bed, with raised sides so he is pretty much enclosed all around. Whenever we go away, we either need toddler rails or to push a desk or chairs up to the side of the bed so he doesn't fall out. He has fallen out a few times, so we take precautions to guard against him really getting injured. Just prior to moving to England, he fell out of bed and the top of his ear hit the aluminium windowsill, slicing straight through the cartilage and causing him to need 5 stitches to put the cartilage back togetehr! So we don't take chances now!

So to answer your question, I am not in the room to watch James sleep but based on where he ends up in the bed, I would say he jumps and moves around A LOT!
Our son Levi seems to have similar problems. It seems he wakes up crying many nights for no reason known to us, but it seems like it is pain. I have always thought that maybe his feet or hands are "falling asleep" and it is an uncomfortable and he doesn't know how to explain himself. He has always had problems though at night. When he was younger (he is 3 now), he needed us to stand at night with him.
Joshua has the same problem. We started giving him a supplement called 'Calm 4 Kids'. It helps with restless leg etc. It can be used at night and throughout the day if muscle aches are constant. It works great for Joshua. We haven't had a problem since he started.

Naomi
So funny that this topic was just started. Wyatt has been having restless nights lately. He gets really wound up at night, but once in his bed, he settles himself. But last night he woke 4 times for no reason known to us. I don't if he can't get comfortable with his boots on or the covers get stuck. I might look into getting that supplement and see if it helps calm him. When he wakes for the day, his bed looks like a tornado went through, the covers are all over the place. Sad to say, but it is nice to see other families having the same issue.
We have the same issue with Ryan (3 1/2) but he is restless and doesn't sleep well at all. I am usually in his room with him at least 2-3 hours a night. He takes melatonin before bed which is supposed to relax him and help him sleep, but it doesn't seem to help. Does the Calm 4 Kids help them sleep as well? I posted about this before, but didn't get much of a response about the sleeping issue.
Thanks,
Jen
Joshua used to have night terrors and he would toss and turn and almost fall off the bed. Since we've been giving him these, about a year now, his night terrors have stopped, and he moves like anyone else does but his blankets and pillows aren't on the floor anymore. He will throw the blanket off of himself but that is only because he's a hot sleeper and can't stand any blankets over his boots. You can buy them at any nutrition store. They come in a small bottle of 125 for just under $20 over here and they dissolve on the tongue.

Naomi
Kelvin also needs a wind down time, he lays next to me on the couch while I start to massage his legs, it can take 30 minutes or more for him to start to drift off, in the meanwhile he wants to talk and talk and talk, then the massaging helps to calm him and he goes asleep, then I stretch him and get a very long lasting great stretch with no tension, as when he is awake, he is tense and tends to try to push or not like it. Also, the doctors have said to make sure that steroids are given early in the am so that their normal cortisol levels function properly, otherwise, it could keep them awake. Michelle
Sometimes I have restless nights where I am just tossing and turning....and can't seem to get any rest at all!
I don't know if it has to do with the steroids or what?
Prednisone is known to cause insomnia
That could be why?
Neel is 2 he is not on steroids and doesn't even wear night splints yet so I don't see that to be an issue. I don't know what's going on with him, it might be something that I discuss with his pediatrician. Thanks.

Susana Arroyo said:
Sometimes I have restless nights where I am just tossing and turning....and can't seem to get any rest at all!
I don't know if it has to do with the steroids or what?
Prednisone is known to cause insomnia
That could be why?
Yeah that could be something different, It's a good idea to talk about it with his pediatrician.
I ran into one of our son's classmate's at the library today. Her mom was telling me that her daughter has had trouble since birth sleeping well. She said that recently she had her daughter go through a sleep study and it turns out that she had sleep apenia. She was telling me that the atnoids and tongue had actually cut off the air space at the back of the throat. This she said can be even more so if the child has lack of muscle tone. She also said that her daughter would literally kick to get herself to start breathing again during the night. I know that the lack of oxygen and interrupted sleep can cause stress on the major organs like heart and lungs. I forgot to mention that due to the sleep study, the little girl had her tonsils and atnoids out.

We just returned from seeing Dr. Wong back in Feb. I had asked to see a pulmonary specialist just because I wanted him followed. I didn't think there were any sleep issues other than he is restless and he sweats alot. The head of the department looked at our son and he said that his tongue - which is commonly larger with DMD boys - was large and attached at the back of month higher than other kids. He recommended a sleep study when we returned home.
This is all very interesting and I think we will see about a sleep study.

The girl's teachers are noticing better concentration, better responsive speech, less mild downs, etc.
Char Burke
DMD mom - Will age 6

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