Today was the funeral of my friend Sam Morgan from a small village in Wales, United Kingdom. He was 22 and had been ill and in pain some time whilst struggling with DMD. We used to communicate to and fro using the Action Duchenne website. He would ask me all sorts of questions about DMD, and I willingly told him what I knew. He was so hungry for knowledge and worried about his breathing. DMD is so heartbreaking in this respect. He always encouraged me and thanked me in my endeavors campaigning for change here in Wales. With his posthumous help I'm now publishing my book, thank YOU Sam and his family. Love you all xxxxxx
Rest in peace you kind and generous soul.