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Darcy,
We started our son at age 5 with night splints that he wears only in bed at night, and (BDO/AFO )? shoe inserts ( I have pictures of the ) that help keep his feet in a 90 degree position, we don't stretch him, but he does get 30 min a day at school and during the summer. right now he's almost 16 and a half and still walking , not toe walking. He is able to do about a couple of miles in an afternoon with stops and moving at his own pace of about 1.5 mph or 1/2 my walking speed. Recently I bought him earth shoes on-line at planetshoes.com they have the heel lower than the front of the foot and provide a stretch while he is walking to classes, Once in a while he trips or loses his balance but that's more to the the progression of DMD than the shoes.
Your the parent & he's the kid who needs this done, you need to win. If necessary see a psychiatrist or therapist who can work with your son to alleviate his anger and help him to understand that if he doesn't do this he will not be walking much longer. You are the parent.
Sounds like your son is doing great. We've been taking him to the PT to stretch and he does stretch for her. I think he's going thru a stage and I hope he bounces back soon. Had some behavior issues recently but they've calmed down. He does wear his braces and does not toe walk. Did you son ever toe walk? Did he play sports when he was little?
Michael said:Darcy,
We started our son at age 5 with night splints that he wears only in bed at night, and (BDO/AFO )? shoe inserts ( I have pictures of the ) that help keep his feet in a 90 degree position, we don't stretch him, but he does get 30 min a day at school and during the summer. right now he's almost 16 and a half and still walking , not toe walking. He is able to do about a couple of miles in an afternoon with stops and moving at his own pace of about 1.5 mph or 1/2 my walking speed. Recently I bought him earth shoes on-line at planetshoes.com they have the heel lower than the front of the foot and provide a stretch while he is walking to classes, Once in a while he trips or loses his balance but that's more to the the progression of DMD than the shoes.
Your the parent & he's the kid who needs this done, you need to win. If necessary see a psychiatrist or therapist who can work with your son to alleviate his anger and help him to understand that if he doesn't do this he will not be walking much longer. You are the parent.
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