Look up Angela Knight. Her son is in the trial.
I was under the impression that this trial is no longer enrolling patients. In fact it was full long time ago.
Our son Elliott is currently in the Phase 2B Extension study...
What trial are you enrolling in? The only one I am aware of that is currently enrolling is a Phase 2 study for boys who are no longer ambulatory. Is this the study you are enrolling in?
Right. I do know about that. Matt's son is 0-3 (?) years old from what I see in his page... Also no trial enrolls boys younger than 5.
Paul Johnson said:Actually - they just recently opened a new Phase 2 trial for boys who are no longer ambulatory...
www.clinicaltrials.gov - seach for ID NCT01009294
Ofelia Marin said:I was under the impression that this trial is no longer enrolling patients. In fact it was full long time ago.
Matt, is this for the ambulatory trial which is currently in the final phase or the new trial for the non ambulatory trial? My son, Kyle, is in the ambulatory trial and are in final phase waiting for the FDA approval of ataluren (PTC124).